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Old 08-30-2015, 02:08 PM #1
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Hello. Has anyone autonomic neuropathy? When did it started after first symptoms started?
Yes, my autunomic problems started many years before the sensory symptoms.
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Old 08-30-2015, 06:56 PM #2
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Thanks. And what tests are there for autonomic? Can you die from autonomic?
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Old 08-30-2015, 09:17 PM #3
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My autonomic neuropathy was one of my first major problems.

There are many tests for autonomic dysfunction...all depending on what your symptoms are (which you don't mention). Tilt table will determine whether there are any POTS or orthostatic hypotension affecting your heart rate or BP. There is also 24 hour BP monitoring as well as holter monitors for heart rate.

If you have GI problems, then gastric empty study is available.

There is QSART and skin biopsy to check for general autonomic fiber damage and/or sweat dysfunction.

Sure, you can die from autonomic neuropathy, but it all depends on your level of autonomic failure, the cause, symptoms, and tolerance for medications. But most people can find ways to manage their autonomic dysfunction with medication, life-style changes, etc.
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Old 08-30-2015, 09:30 PM #4
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My autonomic neuropathy was one of my first major problems.

There are many tests for autonomic dysfunction...all depending on what your symptoms are (which you don't mention). Tilt table will determine whether there are any POTS or orthostatic hypotension affecting your heart rate or BP. There is also 24 hour BP monitoring as well as holter monitors for heart rate.

If you have GI problems, then gastric empty study is available.

There is QSART and skin biopsy to check for general autonomic fiber damage and/or sweat dysfunction.

Sure, you can die from autonomic neuropathy, but it all depends on your level of autonomic failure, the cause, symptoms, and tolerance for medications. But most people can find ways to manage their autonomic dysfunction with medication, life-style changes, etc.
Frankly at my age dying from it sounds better than living with it.
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Old 08-30-2015, 10:34 PM #5
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Frankly at my age dying from it sounds better than living with it.
It's really quite manageable. I have severe autonomic dysfunction and have adjusted to medications, life-style changes and simply learning to live with a different level of function than most other people.
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Old 08-31-2015, 07:10 AM #6
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My first autonomic symptoms started a year before the major sensory ones. I would have random times of vertigo, orthostatic hypertension which just kept getting worse, palpitations, agitations, confusion, and an electrical surge feeling just as I was falling asleep. I started noticing that my muscles wouldn't recover from work outs and I became weaker and had some random numb spots in legs and tingling in left foot and in my hands when elevated. It took a year for all this to develop into full body and face sensory pain and symptoms.
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Old 08-31-2015, 08:54 AM #7
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Thanks to all. No, I do not have autonomic, I hope. I am very scared of getting it ... I have just palpitations in stressfull situations, but they say it is normal. I had numbers of ecgs, echoes, gastro and renal function ok, I did not have the tilt table test. My major problem is tingling all over body ... and vibration/buzzing sensation. My new symptom is like stabbing with a needle in my legs and arms but especially in my left arm.
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Old 09-09-2015, 03:58 PM #8
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My first autonomic symptoms started a year before the major sensory ones. I would have random times of vertigo, orthostatic hypertension which just kept getting worse, palpitations, agitations, confusion, and an electrical surge feeling just as I was falling asleep. I started noticing that my muscles wouldn't recover from work outs and I became weaker and had some random numb spots in legs and tingling in left foot and in my hands when elevated. It took a year for all this to develop into full body and face sensory pain and symptoms.
Every day I wonder if my comdition has worsened to now include autonomic function problems. My doctors have termed my pain condition a central sensitization but don't seem to fully understand that I feel sick almost all the time. After a meal my body goes into a 'funk" where my whole body vibrates and I feel gross. How do you explain that to a doctor without sounding nuts? I'm also having hot flashes and flushes all the time.... Not anything like menopause. I feel nauseous and ill when they occur. I've been through menopause and am all too familiar with that type of sudden flush; but this includes my palms and feet and seems to jack up the burning I have in them. I've been from pillar to post with doctors and have given up hope that they will ever be able to do anything for me but write a RX. Maybe that's why I vent here. Thx!
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Old 09-10-2015, 11:02 AM #9
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I understand just how you feel. I have interstitial cystitis which is a bladder disease and right after I found out I had IC I was in a serious car wreck and had to have surgery. Right after that I started having symptoms of neuropathy. I've been to 12 different Drs. It has been a nightmare! Over a year now and just 2 months ago finally an SFN diagnosis. I'm sure I have something autonomic going on too. I eat and the muscles in my upper and and back go nuts. Especially if I'm constipated......which I am a lot! I also have not been able to sleep. I HAVE to take Lunesta to get 5 hours of sleep. It's been crazy. My left arm and leg just don't work right and shake like crazy at times. I have a lot of trouble walking. I'm so tired of no answers. I've had every test there is. (Brain scan, 2Cat scans gasric emptying colonoscopy endoscopy pelvic floor therapy dry needling ...etc)Seeing my 3rd neuro doc October 14. Not getting my hopes up. Thx Kate
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