Junior Member
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Join Date: Aug 2015
Location: Denver
Posts: 48
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Junior Member
Join Date: Aug 2015
Location: Denver
Posts: 48
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I understand just how you feel. I have interstitial cystitis which is a bladder disease and right after I found out I had IC I was in a serious car wreck and had to have surgery. Right after that I started having symptoms of neuropathy. I've been to 12 different Drs. It has been a nightmare! Over a year now and just 2 months ago finally an SFN diagnosis. I'm sure I have something autonomic going on too. I eat and the muscles in my upper and and back go nuts. Especially if I'm constipated......which I am a lot! I also have not been able to sleep. I HAVE to take Lunesta to get 5 hours of sleep. It's been crazy. My left arm and leg just don't work right and shake like crazy at times. I have a lot of trouble walking. I'm so tired of no answers. I've had every test there is. (Brain scan, 2Cat scans gasric emptying colonoscopy endoscopy pelvic floor therapy dry needling ...etc)Seeing my 3rd neuro doc October 14. Not getting my hopes up. Thx Kate
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