I've had SFN now for almost 3 years (diagnosed through nerve biopsy) but now dealing with major generalized weakness. I've been getting IVIg every 4 weeks or so. My last EMG was abnormal where in January it was normal. I'm currently in a Subscute rehab center in hopes in can get strong enough to go home, however my neuropathy and weakness gets worse with activity. I'm being referred to Hopkins. I've got foot drop and denervation in my calf muscle ( think the muscle starts with a z) I've also got short waves (not sure exactly what it means other than myopathy I believe ) in lower body EMG I one muscle of which I can't think of the name of. Anyway just hoping there might be others with some insight or at least hope.

Thanks!
Pam