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Old 08-31-2015, 07:54 PM #1
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Since these changes , have you had a new work up , or with a new dr?
Don't settle for a single dx that maybe not be right , or could be a separate new condition..

I would seek another opinion totally separate from the current dr.

Perhaps even a expert chiropractic assessment..
Have you had recent MRI of the spine and brain? Just to check for any other causes?

Acupuncture?
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Old 08-31-2015, 08:58 PM #2
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I have major proprioception issues and have had numerous falls from just simply looking up (away from my feet) and losing the sense of where they are at. You absolutely HAVE TO pay attention and move slowly to ensure you are placing your feet correctly to avoid falls. If it affects your ability to drive, then you need to stop driving at all. What are your symptoms?

One of the reasons my IVIG was increased to neuropathy treatment levels was not for reversal of neuropathy damage (as mine is considered permanent), but instead for slowing progression and specifically hoping to improve some aspects of my neuropathy, to include proprioception. Of course, it is hard to confirm whether or not it is helping this particular part of my neuropathy, but I have only had one fall in the last 6 months...and that is a VERY big improvement for me.

Have they tested your proprioception (fingers, toes, hands and feet)? How far up do you test positive (toes, ankles, knees, etc.) What about the Romberg's test...do you fall with eyes closed?

Some people can be helped with physical therapy...there is specific training for proprioception skills. Have you tried this?
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Old 08-31-2015, 11:00 PM #3
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Quote:
Originally Posted by en bloc View Post
I have major proprioception issues and have had numerous falls from just simply looking up (away from my feet) and losing the sense of where they are at. You absolutely HAVE TO pay attention and move slowly to ensure you are placing your feet correctly to avoid falls. If it affects your ability to drive, then you need to stop driving at all. What are your symptoms?

One of the reasons my IVIG was increased to neuropathy treatment levels was not for reversal of neuropathy damage (as mine is considered permanent), but instead for slowing progression and specifically hoping to improve some aspects of my neuropathy, to include proprioception. Of course, it is hard to confirm whether or not it is helping this particular part of my neuropathy, but I have only had one fall in the last 6 months...and that is a VERY big improvement for me.

Have they tested your proprioception (fingers, toes, hands and feet)? How far up do you test positive (toes, ankles, knees, etc.) What about the Romberg's test...do you fall with eyes closed?

Some people can be helped with physical therapy...there is specific training for proprioception skills. Have you tried this?


I get the IVIG because of weakness. I've tested positives up to my knees. They don't deal with vestibular therapy here (in sub acute rehab/nursing home) I've done that before and know the benefits but got to get what's going on with legs that's causing the co contraction under control first. Having muscles working against the ones that need to work is exhausting them so no endurance
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Old 08-31-2015, 10:52 PM #4
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Quote:
Originally Posted by Jo*mar View Post
Since these changes , have you had a new work up , or with a new dr?
Don't settle for a single dx that maybe not be right , or could be a separate new condition..

I would seek another opinion totally separate from the current dr.

Perhaps even a expert chiropractic assessment..
Have you had recent MRI of the spine and brain? Just to check for any other causes?

Acupuncture?
I've had major work up. I've gotten 6 IVIG treatments since Jan and this last one they waited and did major work up before the Treatment including lumbar puncture. I am having a cat scan of chest abdominal and pelvis area looking for cancer. I'm being referred to Hopkins from a very well respected teaching hospital. As far as a chiropractor ,they won't touché with a ten foot pole note would I let them (2 level cervical ACDF which is and had been stable since after surgery)
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