I am not sure what to think. The neurologist didn't look at my other neurologists notes, my MRI's or my blood tests. He listened to me at length and looked only at my nerve testing only. He then did a very thorough examination and got reflex responses out of areas (my ankles) where my other doctor didn't. There was only one test that showed any possible damage on my right foot. It was a vibration test. He told me it was pretty insignificant. He had me walk on my heels, on my toes, bend and touch the ground, and did muscle testing. After all this he said my sensations are caused by crossing my legs and being thin and I needed to stop crossing them. He also said I had carpal tunnel in my hands but nothing major. He recommended a brace I could get for my wrist if I wanted to.

It seems over simplified to me. Also, it would be hard for him to know if my muscles are weaker as he has no frame of reference. Prior to all this my legs were very strong as I worked out and also danced ballet. And bending over to touch my toes is crazy easy for me as I am super flexible. So, I do not know what to think. If I drank this would be a good time to have a few.

Also, he said my twitches were benign fasciculations not PN.

Any thoughts? Please.

Have you ever explored HNPP? (Hereditary Neuropathy with Liability to Pressure Palsies). Here is a good site telling all about it.

http://www.hnpp.org/

I mention this since you were told not to cross your legs. Just throwing it out there.

It's not anywhere in my family but thank you for mentioning. It's always good to get information.

Hi Pinky Nose, I hope he is right that is good news. Curious why did you change neurologist. It is puzzling his diagnosis. How long ago were the other test taken. He is right about crossing legs that causes me to have symptoms, but I do have PN.

I had mitral vale prolapse and. Recent cardiologist don't hear anything. It took care of itself. Then a. Nurse said to me you don't get rid of it.

All I know is it does not bother me any more so I go by the way I feel.

When


Uglogirl

I went to him for a 2nd opinion. My neurologist referred as he is a specialist in PN and regarded highly in the medical community. He's one of the top neurologists at a teaching hospital so I foolishly thought he'd be open minded. He spent at least an hour with me and was thorough in his exam but it baffles me why he didn't bother with at least my MRI. I hate to blame it on his age (74) because I'm not far behind but I think he may be set in his ways and has a bit too large of an ego. Hard to know for sure. Time will tell. Meanwhile I'm trying hard to break the habit of crossing my legs as I know it's not good for me regardless.

Well, you have the MRI report...did it show anything important? If it did, then did you at least bring up the findings to the neuro? That may have sparked some interest in him looking at the MRI.

I haven't recently read your previous posts...what (summarized) are your primary symptoms?

Since your neuro referred you to this guy, then I'm assuming he felt you HAVE PN. If you are comfortable with his Dx, then I wouldn't worry about what this new specialist has to say. He seemed to draw conclusions pretty quick without any testing (other than exam).

If he is correct, then yes, it would be good news. But you seem to indicate that your symptoms go beyond some twitches and minor sensory problems from crossing your legs (which would be easy to Dx if they ONLY happen when your legs are crossed).

Time will tell. Are you going to talk to your neurologist about his diagnosis.

Enbloc: after he looked at the nerve testing and did his testing exam he told me that i did not have any nerve damage even though it was indicated on the nerve test. That became his logic for not looking any further. I did tell him about the MRI & that the referring neurologist wanted him to look at it because he thought it could be the reason for symptoms. But without nerve damage the symptoms lost their importance to him. I think that's a problem with doctors. Without tangible damage they can't commit to the disease, but I believe it takes time for damage to show. Am I suppose to wait for it? I am beyond frustrated. Anyway, I have all the usual SFPN sensations: burning, tingling, pins & needles, buzzing, random sharp pricks. itching on feet, legs, hands and mouth. Evening & nights are the worst. I will be going back to my original doctor who does feel I probably have SFN although he hasn't made it official.

Uglogirl: yes I will tell my primary neurologist exactly what happened.

i think its about time to find another neuro if you can, This neuro seems too lazy, dint want to do anything, but only see you as a cash cow. a top specialist in thier field, doesnt mean that thier the neccesarily the best doctors. Some doctors that arnt in the top are the best. Im pretty sure he is the best in the research field, if he is more invested in being a scientist, hes unlikely going to put effort into being a good doctor, being a doctor is a side job to him, and some doctors are annoyed at patients who complain too much. you can compare this to college professor, some people are only professors, so they can do research/scientist, on the professor side, they are the worst teachers of the subject because all thier energy is into research and not teach mundane subjects to lowly students, but good at researching. or he is more interested in rare diseases in stead of the common "neuropathy".

When you were diagnosed with mitral valve prolapse, was this based solely upon the physician listening to your heart with his stethoscope?

I have heard that it is common, especially for a female, to have a "floppy" valve that will occasionally not close tightly and the physician may hear that on occasion. Also, told, that it is not something of concern. It is sort of like the flapper inside a toilet tank that may not close properly on occasion for any number of reasons.

That would explain why one doctor heard something and another did not.

Have you ever followed up on this matter and received additional testing? It might be worth looking into and not just dismissed as a fluke or common place.

Your post concerns me. Doctors sometime make mistakes but we as patients have to follow up and find out if it was a mistake or something that needs attention.