[CCWalker]

Well, today I go to my PCP to try to get some answers from my visit to Barn's Jewish. I am going with a list if questions and tests I would like ran. He had asked me if I have applied for disability, that requires me quiting my job. I gave notice yesterday and 11-19 is my last day at work. I pray the disability process doesn't take years. The last 3 weeks have been hell since my pain level has Ben off the charts and it feels like I am walking on glass. I have noticed I am loosing strength in my legs, right worse than left, and not sure what to do. I already walk with a walker and PCP said I don't qualify for a scooter yet. So frustrated with my PN!!!!!

[zkrp01]

Originally Posted by CCWalker

Well, today I go to my PCP to try to get some answers from my visit to Barn's Jewish. I am going with a list if questions and tests I would like ran. He had asked me if I have applied for disability, that requires me quiting my job. I gave notice yesterday and 11-19 is my last day at work. I pray the disability process doesn't take years. The last 3 weeks have been hell since my pain level has Ben off the charts and it feels like I am walking on glass. I have noticed I am loosing strength in my legs, right worse than left, and not sure what to do. I already walk with a walker and PCP said I don't qualify for a scooter yet. So frustrated with my PN!!!!!

I had started falling and went to a walker after a small car wreck. I tried to rehab my legs and figured out that Physical Therapy was not going to do the trick. Only time and nerve regrowth would help. I had Amtotrophy that included a crucial phase that included muscle wasting. I still exercized daily but it was to try to get those muscles firing again. After about 8 months, the strength started coming slowly back and the walker is now back in the closet. I would advise to get help for your pain. If your Dr cannot go far enough to help, use pain management to get stronger meds. I had to use Hydrocodone for about 6 mo until my pain changed. I was nearly depressed before I finally started taking them. 2 yrs past now and I no longer take Hydro or Gaba. I feel your sense of loss but try to believe that things will not always be the way they are now. Good Luck, Ken in Texas.

[pinkynose]

It's great that you have your questions ready for him/her. You would not believe how many people go for their appointments empty handed and empty headed! Good for you

[caroline2]

Hi, I've told the story about my friend. She's had neuropathy long before I knew her. IN the past 6 yrs or so I've gotten to know her better and she has shared about the iodopathic damage, but she now understands its from 3 decades of statins. She's done all the drugs and now off them.

When I really got to know her I was forever talking about grape seed extract to my bridge friends, as I've been taking this antioxidant for 20 yrs. She is a bridge friend.

So she made the leap to grape seed extract. She is NOT a supplement person but now she is Somewhat. She is feeling much improvement and feels better with this nerve damage. She has so much improvement, she has her adult daughter on grape seed ex now. This is a huge testimony from a person not into supplements.

So, I realize more and more about this neuropathy since I've been on NT. I came here due to nerve damage from hip replacement 5 yrs ago. The nerve burn/tingle I had for 5 yrs is about gone since I got on Inosine and Sphingolin. I've talked about these here and I think some others may be taking these two also. Not sure about that.

I know many take supplements like B12 and ALA and other supports. Hope you can get help.

[Cliffman]

Originally Posted by zkrp01

I had started falling and went to a walker after a small car wreck. I tried to rehab my legs and figured out that Physical Therapy was not going to do the trick. Only time and nerve regrowth would help. I had Amtotrophy that included a crucial phase that included muscle wasting. I still exercized daily but it was to try to get those muscles firing again. After about 8 months, the strength started coming slowly back and the walker is now back in the closet. I would advise to get help for your pain. If your Dr cannot go far enough to help, use pain management to get stronger meds. I had to use Hydrocodone for about 6 mo until my pain changed. I was nearly depressed before I finally started taking them. 2 yrs past now and I no longer take Hydro or Gaba. I feel your sense of loss but try to believe that things will not always be the way they are now. Good Luck, Ken in Texas.

I'm curious Ken...what type of exercise did you do to get your legs stronger given your pain levels?

Thanks.....

Cliffman

[Jomar]

Originally Posted by CCWalker

Well, today I go to my PCP to try to get some answers from my visit to Barn's Jewish. I am going with a list if questions and tests I would like ran. He had asked me if I have applied for disability, that requires me quiting my job. I gave notice yesterday and 11-19 is my last day at work. I pray the disability process doesn't take years. The last 3 weeks have been hell since my pain level has Ben off the charts and it feels like I am walking on glass. I have noticed I am loosing strength in my legs, right worse than left, and not sure what to do. I already walk with a walker and PCP said I don't qualify for a scooter yet. So frustrated with my PN!!!!!

Please explore our SSDI forums and the sticky threads, to learn the tips and best ways to proceed for Disability filing..
If you were still able to work even with some restrictions, did you give notice mainly because of the dr asking if you filed for SSDI?
SSDI forum-
http://neurotalk.psychcentral.com/forum28.html
Don't start your claim unprepared!!!
http://neurotalk.psychcentral.com/thread148967.html
Catch 22- Tips & Helpful info -
http://neurotalk.psychcentral.com/thread120255.html

[CCWalker]

Originally Posted by zkrp01

I had started falling and went to a walker after a small car wreck. I tried to rehab my legs and figured out that Physical Therapy was not going to do the trick. Only time and nerve regrowth would help. I had Amtotrophy that included a crucial phase that included muscle wasting. I still exercized daily but it was to try to get those muscles firing again. After about 8 months, the strength started coming slowly back and the walker is now back in the closet. I would advise to get help for your pain. If your Dr cannot go far enough to help, use pain management to get stronger meds. I had to use Hydrocodone for about 6 mo until my pain changed. I was nearly depressed before I finally started taking them. 2 yrs past now and I no longer take Hydro or Gaba. I feel your sense of loss but try to believe that things will not always be the way they are now. Good Luck, Ken in Texas.

I am happy to say that he did increase my pain medication dose. He totally understands that I am in constant pain but I try to work past it. I will be glad for the day when I don't have to take medications any more. Thank you Ken in Texas.

[CCWalker]

Originally Posted by pinkynose

It's great that you have your questions ready for him/her. You would not believe how many people go for their appointments empty handed and empty headed! Good for you

I try to be prepared in almost everything that I do. Some call it OCD. lol I just know that I have a lot of questions that needed answered.

[CCWalker]

Originally Posted by caroline2

Hi, I've told the story about my friend. She's had neuropathy long before I knew her. IN the past 6 yrs or so I've gotten to know her better and she has shared about the iodopathic damage, but she now understands its from 3 decades of statins. She's done all the drugs and now off them.

When I really got to know her I was forever talking about grape seed extract to my bridge friends, as I've been taking this antioxidant for 20 yrs. She is a bridge friend.

So she made the leap to grape seed extract. She is NOT a supplement person but now she is Somewhat. She is feeling much improvement and feels better with this nerve damage. She has so much improvement, she has her adult daughter on grape seed ex now. This is a huge testimony from a person not into supplements.

So, I realize more and more about this neuropathy since I've been on NT. I came here due to nerve damage from hip replacement 5 yrs ago. The nerve burn/tingle I had for 5 yrs is about gone since I got on Inosine and Sphingolin. I've talked about these here and I think some others may be taking these two also. Not sure about that.

I know many take supplements like B12 and ALA and other supports. Hope you can get help.

Well, I am very lucky that my Dr is the type that really listen's to his patients. We are taking me off the statin's and are checking my A1C, B12 and B6 levels He agrees' that the statin's could be causing some of my muscle weakness and trimmers that I am having. He also agrees' with referring me to the MAYO Clinic to see if they can help with treatment. I feel a little better now that I have sat down with my Doc and know that we are on the same path. I will keep everyone posted on how my labs come out. Thanks for all the support.

[Ragtop262]

Originally Posted by CCWalker

Well, I am very lucky that my Dr is the type that really listen's to his patients. We are taking me off the statin's and are checking my A1C, B12 and B6 levels He agrees' that the statin's could be causing some of my muscle weakness and trimmers that I am having. He also agrees' with referring me to the MAYO Clinic to see if they can help with treatment. I feel a little better now that I have sat down with my Doc and know that we are on the same path. I will keep everyone posted on how my labs come out. Thanks for all the support.

I'm glad to see that your doctor is taking a proactive approach regarding your condition. Your getting more action than a lot of us do from our doctors. Hopefully, you will find the cause and it will be treatable