Did someone this test done and how were the results?

Hi Barb
I have (had) these. I have anticardiolipin IgM. I have had them for at least a decade, although sometimes they have come and gone with me. I usually have them in the range of 24-60. I had to be on coagulation with my pregnancies, although I was told I did not have this as a primary syndrome because I do not have any evidence of blood clot, stroke, etc. Although lately have been having a lot of small vessel issues with this nerve problem, so I don't know.

I am actually going back to neuro and rheumatologist this week for testing of them. My PN is yet to be diagnosed. In process now.

Curious - has this come up with you >?

There are 3 blood tests typicaly used in diagnosing antiphospholipid syndrome (APS). These are: Anticardiolipin antibodies (aCL) Lupus anticoagulant (LA) Anti-beta2-glycoprotein-1 (anti-B2GP1). The first test (aCL) is the most common one drawn first.

Although tests results may come back positive, a diagnosis of APS is typically NOT given unless there are two positive lab tests at least 6 months apart AND a confimred thrombotic episode (either stroke, PE, TIA, DVT, etc).

Some with positive labs but not a cotting episode may be given aspirin as a precaution, or blood thinners during pregnancy. BUt routine blood thinners are not used unless a documented clotting event has occurred.

Have you had a positive test or blood clot?

This caught my eye right away...
Yes, I have high positive for beta 2 glycoprotein and just a slightly elevated anti-cardio. I don't know how significant they are though, because I haven't had a "clinical" event. Makes me feel like a sitting duck though.

With both labs positive, you might want to consider asking your doctor about taking a daily aspirin as a precaution. Do you have autoimmine disease of any kind?

Hey please read this thread and post your comments there... http://neurotalk.psychcentral.com/sh...46#post1179946

Thanks for your reply En Bloc... No auto-immune, yet. I have been tested several times though because of high sed, severe joint and muscle pain, and then of course what brought me here... The most awful nerve pain. My skin biopsy was normal density with "occasional" axonal swelling. I know it's just a matter of time before the labs match how I feel. Thanks for all your valuable posts. I often read them.