Originally Posted by caroline2

until I met a bridge friend about 7 yrs ago. Into knowing her more, she started talking about the "idopathic" neuropathy she struggles with since 2000. She had been taking statins for 30 yrs and she and doc never put it together on all this nerve damage/pain. She is off statins pretty much too on her own, not the doctor's insistence. She had so much fear of cholesterol. And most doctors instill that fear too. Alternative/complimentary doctors are another animal.

She also deals with squamish cell cancers and was forever having them cut and burned from her legs....so more trauma.

I just talked to her and she's off neurontin/gabapentin and is probably 60% improved...she is so much improved now. She has been taking grape seed ex for at least 4 yrs maybe longer. I told her about it as I tell all people who come into my existence.

I'm sure this nerve pain issues has been around forever, but never had a name as it does today. My dad drank all his life but never talked about nerve pain issues. So I never heard about it back in my early life. He never quit drinking so maybe he was forever deadening the pain.

So I'm forever thinking about what was back then and what is today with the medical world and health issues.

I know grape seed ex has been discussed on this group and other groups on this forum but if it were me dealing with all the pain I hear about here, I'd sure get on grape seed ex....it can only help everything.

I'm at NT as I was looking for support on the Femoral Nerve Damage I ended up with from hip replacement in 2010. For the most part the burn/tingle is gone on my thigh due to inosine/sphingolin. I know many want no parts of these but they helped me. Thigh is very numb so I can only say the nerves are very damaged and probably dead.

Well, thanks for reading. I had to put down what my thinking is and it's terrible so many are in so much pain. I have pain which is mainly arthritic but I manage it and live with it. I sleep good so that is a blessing which I'm so thankful for. C

I was also dx'd with Fibro in 1999 and never believed this NEW health condition. I've addressed so much for this so called fibro: thyroid, adrenals, hormones, minerals and more. I've heard many docs don't buy into that dx. It's almost like a doctor doesn't know what to do, she you are given the Fibro dx. Oh well. Being aware and helping ourselves is so important.

Originally Posted by caroline2

My friend and I talked about the "old times" and she said one of her friends told her his father used to rub his feet a lot as he said they were painful.

Maybe there was always pain, could be my father had pain too but I never heard about it. I think MAYBE back then, just my guessing, a lot of diabetes went untreated or people were not aware of it. I know my family ate LOTS of sugar and carbs all my early life.

I've also thought that with so many pharma drugs being given to people, these drugs could be causing so many more problems. My parents lived into 90's with all the sugar/carbs in their bodies and anacin/bufferin/excedrin in their medicine cabinets. Considering their lifestyles, they were pretty healthy, no big bad stuff. Arthritis was very evident in my family, women's side anyway. Just thinking about it all.

Originally Posted by pinkynose

Someone told me it was Restless Leg. I joined a RLS forum and no one there suggested my symptoms could be Neuropathy.

Originally Posted by Patrick Winter

I had actually heard of it. I had seen something where radio Host Glenn Beck mentioned having it and how it was keeping him from doing his radio show. Although now he claims it was actually Addison's disease? Before that i had only heard of neuralgia and fibromyalgia. What is annoying is having to explain what neuropathy is to everyone who asks what i have. Almost no one knows what it is. Small Fiber neuropathy years ago was simply labelled under the broad fibromyalgia banner. They now have a name for it because of the small punch biopsy. At least that is what 2 different neurologists told me.

I just wish more doctors would be willing to point the finger at medicines for people who have idiopathic SFN. They always act like its impossible for it to be the case. Meanwhile, the studies are out there, Statins, Chemo, Acid Reducers, the list goes on and on... It's never the medicine, its always something else. Well, if it is why can't you find what that is???

Then at the same time it would be nice if they encouraged more people to take supplements. There are many that help with this, Benfotiamine, B12, R-Lipoic Acid, Evening Primrose Oil, Acetyl l-Carnitine and more. They aren't gonna drug you into a stupor like the big 3 (lyrica, Neurontin, Cymbalta) will but they will give a reduction in pain and improvement in health overall for many (not all). Most of my Neurologists tell me, you can go ahead and take it but I don't think it's very effective.