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Old 11-28-2015, 06:35 PM #1
kazzak21 kazzak21 is offline
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[QUOTE=pinkynose;1185925]I have carpal tunnel and my right hand and wrist would feel like it was falling asleep sometimes. I try now to limit my time on the computer. My doctor recommended a brace for my wrist if it continued but it is much better. I think MrsD had a brace she mentioned on a post.

Symptoms in my feet and legs and low back started and then shortly after my arms and hands. I originally thought it was strange but now I feel once your nerves are inflamed it can happen anywhere. I think inflammation (and gut health) is key in my SFN.[/QUOTE

Yes I agree my diet does need some work, going to see a nutritionist before Christmas. It's really freaky when you get new symptoms, have you been working on specific things on your gut health, like gluten free? ]
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Old 11-28-2015, 10:39 PM #2
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[QUOTE=kazzak21;1185979]
Quote:
Originally Posted by pinkynose View Post

Yes I agree my diet does need some work, going to see a nutritionist before Christmas. It's really freaky when you get new symptoms, have you been working on specific things on your gut health, like gluten free? ]
1) Gluten is not a real issue for me but sugar is so I try to be white flour free. White bread has very little fiber and a lot of sugar and it converts to sugar pretty quickly. When I do I eat gluten I go for whole-grains, which are fiber-rich and my body has to work harder to break down and longer to turn them to sugar.
2) No artificial sweeteners
3) I don't eat processed meats and stay away from packaged foods that have ingredients I've never heard of and can't even pronounce.
4) I try to eat foods that keep my system alkaline and avoid ones that make me acidic or at the very least balance them out at meals. If you need more info on this PM me.
5) I eat fruit but I don't drink fruit juice because I am aware of the sugar content.

I feel the biggest enemy to gut health is sugar.

I am nowhere near perfect on this. I do the best I can but when I cheat I do try to do so knowingly. Hope this helps.
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Old 11-29-2015, 03:50 AM #3
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[QUOTE=pinkynose;1186010]
Quote:
Originally Posted by kazzak21 View Post

1) Gluten is not a real issue for me but sugar is so I try to be white flour free. White bread has very little fiber and a lot of sugar and it converts to sugar pretty quickly. When I do I eat gluten I go for whole-grains, which are fiber-rich and my body has to work harder to break down and longer to turn them to sugar.
2) No artificial sweeteners
3) I don't eat processed meats and stay away from packaged foods that have ingredients I've never heard of and can't even pronounce.
4) I try to eat foods that keep my system alkaline and avoid ones that make me acidic or at the very least balance them out at meals. If you need more info on this PM me.
5) I eat fruit but I don't drink fruit juice because I am aware of the sugar content.

Thanks for that information, yes I think I have far to much sugar in my diet, I have quite a sweet tooth. Just really interested, has your neuropathy improved since you have started to eliminate sugar?


I feel the biggest enemy to gut health is sugar.

I am nowhere near perfect on this. I do the best I can but when I cheat I do try to do so knowingly. Hope this helps.
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Old 11-29-2015, 10:22 AM #4
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Default I have trouble keeping to just a few words. Sorry!

Quote:
Originally Posted by kazzak21 View Post
Thanks for that information, yes I think I have far to much sugar in my diet, I have quite a sweet tooth.
I understand about having a sweet tooth. I have a mouth full of them! And full disclosure, I have not completely eliminated sugar, I cut way down and make more sensible choices most of the time.

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Originally Posted by kazzak21 View Post
Just really interested, has your neuropathy improved since you have started to eliminate sugar?
It is hard to answer because my symptoms had gotten better by the time I finally accepted that I needed to cut out/down the amount of sugar I was ingesting. What I do know with certainty is that whenever I take in too much sugar my burning is much worse and extends to my hands and the stabbing pains I rarely get anymore begin to show up. It also causes me to have disrupted sleep.

I do not know if you have discovered a cause for your neuropathy. Mine is believed to come from my lumbar spine, but that is only a best guess. I see a chiropractor and a PT for that. It made no sense in the beginning to me that sugar or diet would play a role in my symptoms if they came from my spine. I now know that because of my spine my nerves are inflamed and irritated and anything I can do to reduce that inflammation will help my symptoms.

A little about Sugar, and the Brain:

When sugar is eaten the bacteria in your intestines, which make B vitamin complexes, begin to die. When the B vitamin complex levels decrease, a compound known as glutamic acid is not processed. Glutamic acid is one of the main components of brain function.

Refined sugar is not a food-- it is a chemical.

Here is an short article on sugar. It's mostly about mental health but it does include neuropathy. There are many others on credible sites. It states. "When refined sugar is consumed over a long period of time, the resulting chronic low level of available glutamic acid and consequent impaired glutamic acid utilization is associated with various neurological disorders such as Parkinson's disease, neuropathy, depression, epilepsy, and schizophrenia."
http://amazingdiscoveries.org/H-dece...mental-illness

Last edited by pinkynose; 11-29-2015 at 09:58 PM. Reason: I should never use my cell to write a post.
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Old 12-06-2015, 01:45 PM #5
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Default Is this really peripheral neuropathy or something else

Hi everyone

Just an update, had a nerve conduction test last week and it came back totally normal. Some days pain is getting much better in terms of burning and numbness which hasn't been as prevalent.

However 2-3 times a week seem to get flare ups. Usually starts in late afternoon with burning in the feet. Then start to get pain random burning and achy pain in both wrists, fingers, toes, ankles, hips and elbows. This can get very intense and lasts hours now even there when I get up in the morning. Doesn't seem to be related to exercise. It can go from two toes for 20 secs, into ankle for another 20 secs, into one wrist 20 secs etc. Feel like it is affected by pressure in bed and I want to click it to ease it.

Any ideas, all bloods fine, no swelling, no redness, sensory only symptoms still, having vitamin B12 injections, working on diet. All inflammatory and connective markers normal. It is just very annoying any suggestions appreciated as it is starting to drive me nuts!
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Old 12-06-2015, 01:55 PM #6
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I had three normal nerve conduction studies, before a neurologist, the third I had seen, said this is silly and that I clearly have small fiber neuropathy. So he did a skin punch biopsy, which is how you diagnose SFN. SFN does not show up on nerve conduction studies that pick up damage to larger nerves. Hope this helps.

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Originally Posted by kazzak21 View Post
Hi everyone

Just an update, had a nerve conduction test last week and it came back totally normal. Some days pain is getting much better in terms of burning and numbness which hasn't been as prevalent.

However 2-3 times a week seem to get flare ups. Usually starts in late afternoon with burning in the feet. Then start to get pain random burning and achy pain in both wrists, fingers, toes, ankles, hips and elbows. This can get very intense and lasts hours now even there when I get up in the morning. Doesn't seem to be related to exercise. It can go from two toes for 20 secs, into ankle for another 20 secs, into one wrist 20 secs etc. Feel like it is affected by pressure in bed and I want to click it to ease it.

Any ideas, all bloods fine, no swelling, no redness, sensory only symptoms still, having vitamin B12 injections, working on diet. All inflammatory and connective markers normal. It is just very annoying any suggestions appreciated as it is starting to drive me nuts!
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