[ElaineD]

So I've been treated for SFN for about a year now.

3600 mg gabapentin a day.

This stops the pain, tingling, of my hands and arms, pins sticking in my finger tips sensations, completely. I don't notice it in my feet and legs, since my PN is so profound. And not another places except my face.

But I still have tingling of my face,mostly around my mouth, my lips and tongue.

It is much less than it was. Apparently when SFN progresses to the face that is about the furthest extent of progression.

As far as I can tell it isn't: 1)disabling 2)dangerous to my 'health'. It just is what it is. Nerve damage of surface nerves that don't cause anything but discomfort.

I suppose I could take MORE gabapentin, but the facial sensations aren't painful, just weird. I can sort of 'tune them out' like I tune out my "tinnitus' most of the time.

So if you have SFN, my sense from my own experience is that it is only uncomfortable, and with one of the anti-seizure drugs, the discomfort should improve.

Hugs, Elaine