advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 11-20-2015, 01:03 PM #1
ElaineD's Avatar
ElaineD ElaineD is offline
Member
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
Default Small Fiber Neuropathy: update and notes

So I've been treated for SFN for about a year now.

3600 mg gabapentin a day.

This stops the pain, tingling, of my hands and arms, pins sticking in my finger tips sensations, completely. I don't notice it in my feet and legs, since my PN is so profound. And not another places except my face.

But I still have tingling of my face,mostly around my mouth, my lips and tongue.

It is much less than it was. Apparently when SFN progresses to the face that is about the furthest extent of progression.

As far as I can tell it isn't: 1)disabling 2)dangerous to my 'health'. It just is what it is. Nerve damage of surface nerves that don't cause anything but discomfort.

I suppose I could take MORE gabapentin, but the facial sensations aren't painful, just weird. I can sort of 'tune them out' like I tune out my "tinnitus' most of the time.

So if you have SFN, my sense from my own experience is that it is only uncomfortable, and with one of the anti-seizure drugs, the discomfort should improve.

Hugs, Elaine
ElaineD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
St George 2013 (11-21-2015), zkrp01 (11-21-2015)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly Diagnosed - Small Fiber/Large Fiber Neuropathy! Please Help! JoshuaY46012 Peripheral Neuropathy 17 11-12-2019 03:55 AM
Post-Flu Vaccine Neuropathy (Possible Small Fiber Neuropathy) tarheel15 Peripheral Neuropathy 30 10-04-2019 05:44 PM
Small Fiber Neuropathy Pain and Autonomic Neuropathy. Frustrated! Peripheral Neuropathy 7 10-07-2014 01:15 PM
IVIg Update - Finally a formal Diagnosis! autoimmune small fiber neuropathy Nervous1 Peripheral Neuropathy 2 01-20-2014 04:22 PM
Small Fiber, Large Fiber & Autonomic Neuropathy Loves Pappilions Peripheral Neuropathy 9 06-01-2011 09:02 AM


All times are GMT -5. The time now is 01:08 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.