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Old 12-06-2015, 11:40 PM #11
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Originally Posted by kiwi33 View Post
Hi baba222

The information in this link lists many of the SNPs in SCN9A which have been associated with perception of pain; http://www.painresearchforum.org/res...rce/5937-scn9a .
Thank you for the article.
I have a list from the SCN9A but cant find the important SNPs. There are about 50 listed in my raw data. I joined 23 and me after the FDA debacle and was trying to figure out my situation before I had to fork out major cash for more lab work.

I hope someone is in the know.

I can also PM my raw data to anyone interested.

TIA
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Old 12-06-2015, 11:45 PM #12
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Originally Posted by LouLou1978 View Post
Hi Baba 222, the genetic test is SCN9A - I'm in the UK , they do it is as part of the blood testing for SFN here.

Are you able to post or PM the information about this?

Thank you so much for responding and helping me.
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Old 12-07-2015, 12:14 AM #13
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Hi baba222

"I can also PM my raw data to anyone interested."

If you would like to I would be happy to have a look round and see what I can come up with (no promises).
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Old 12-07-2015, 10:23 AM #14
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Originally Posted by baba222 View Post
I had 23 and me.
What is the particular SNP?
There are many SCN9A to my raw data.
TIA
Hi Baba - I had the SCN9A test done in Ohio. The test was after a meeting with a genetic counselor in the neurology dept at OSU who I was referred to by my main neurologist. It was a blood draw here too - they took two vials I believe and then the results were given to me about 8 weeks later (I don't have the mutation so still idiopathic for me) - hope this helps!
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Old 12-07-2015, 01:54 PM #15
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Originally Posted by boiler1993 View Post
Hi Baba - I had the SCN9A test done in Ohio. The test was after a meeting with a genetic counselor in the neurology dept at OSU who I was referred to by my main neurologist. It was a blood draw here too - they took two vials I believe and then the results were given to me about 8 weeks later (I don't have the mutation so still idiopathic for me) - hope this helps!
Thanks so much. Sounds like I will have to go thru some hoops. Was trying to do it and maybe figure it out on the cheap.

Take care.
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Old 12-07-2015, 01:54 PM #16
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Hi baba222

"I can also PM my raw data to anyone interested."

If you would like to I would be happy to have a look round and see what I can come up with (no promises).
I sent you a PM.

Thank you so much!
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Old 12-12-2015, 06:04 AM #17
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Hi baba222

PM'd you - my impression is that you don't have anything to stress about .
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Old 12-12-2015, 11:43 AM #18
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So what happens if one has this mutation? A little research showed up that it can cause 30% of SFN. So is the idea here (via the article linked to) that finding how to block this mutation will resolve the SFN?

I share the concern re blocking all pain. That could be immensely dangerous for a variety of reasons.
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