[baba222]

http://www.upi.com/Health_News/2015/...9741449265570/

Hoping and praying is all I am saying!

[Cliffman]

Originally Posted by baba222

http://www.upi.com/Health_News/2015/...9741449265570/

Hoping and praying is all I am saying!

Good to know there's something being done for the future.

Thanks Baba for posting the article.

Cliffman

[LouLou1978]

hi there, I am currently being tested for this mutation, my bloodwork got lost last year so I have had to be re-tested for this. It has been found in 30% in people who have idiopathic small fibre neuropathy.

I believe there is a lot of work going into various Nav 1.7 blockers, one of which was convergence, I think they are now getting ready for stage 3 clinical trials

[en bloc]

I can only imagine the relief people might get with a breakthrough like this. But I do have one concern. People rely on pain to signal a problem and if you eliminate ALL pain, then how would one know if there is a medical problem? Someone might miss the early signs of cancer or other devistating conditions without feeling pain. What might they do about this? Does this only eliminate nerve pain?

[baba222]

Originally Posted by LouLou1978

hi there, I am currently being tested for this mutation, my bloodwork got lost last year so I have had to be re-tested for this. It has been found in 30% in people who have idiopathic small fibre neuropathy.

I believe there is a lot of work going into various Nav 1.7 blockers, one of which was convergence, I think they are now getting ready for stage 3 clinical trials

What is the exact test please?

[baba222]

Originally Posted by en bloc

I can only imagine the relief people might get with a breakthrough like this. But I do have one concern. People rely on pain to signal a problem and if you eliminate ALL pain, then how would one know if there is a medical problem? Someone might miss the early signs of cancer or other devistating conditions without feeling pain. What might they do about this? Does this only eliminate nerve pain?

Yes. Not having pain might have some disadvantage.
I am not sure about just the nerve pain.

[LouLou1978]

Originally Posted by baba222

What is the exact test please?

Hi Baba 222, the genetic test is SCN9A - I'm in the UK , they do it is as part of the blood testing for SFN here.

[baba222]

Originally Posted by LouLou1978

Hi Baba 222, the genetic test is SCN9A - I'm in the UK , they do it is as part of the blood testing for SFN here.

Thank you so much.

Anyone did this here in USA? What is the procedure?

[baba222]

Originally Posted by LouLou1978

Hi Baba 222, the genetic test is SCN9A - I'm in the UK , they do it is as part of the blood testing for SFN here.

I had 23 and me.
What is the particular SNP?
There are many SCN9A to my raw data.
TIA

[kiwi33]

Hi baba222

The information in this link lists many of the SNPs in SCN9A which have been associated with perception of pain; http://www.painresearchforum.org/res...rce/5937-scn9a .