Thanks everyone for your ideas. I did see a rheumatologist in the first year of my illness, privately, as the wait list was so long. It cost $320 and he was useless. He went off on the most bizarre way and the appt was a waste of time and money. He's who I'd see if I go onto the hospital waiting list. They've tested for inflammation but it doesn't feature much in the results.

I've seen 2 pain specialists and both said Central sensitisation disorder I asked the first one about CRPS and he became very annoyed and said it doesn't spread and I didn't have it. He'd met me for about 10 minutes so i was impressed at his powers of deduction (please excuse sarcasm )
I did trust the second one, she was very thorough, so I've trusted her diagnosis. To be honest I don't think there's anyone left to see. Not in the New Zealand health system anyway.

Will have a chat with the Arthritis people.

Thanks guys ( :