Hiiii

I apologize in advance haha
I have never posted on a website before and I'm not exactly sure what I'm doing... No lies, it also feels terribly awkward!!

With that being said, I registered yesterday to hopefully get some suggestions, tips, opinions... Absolutely any sort of knowledge or insight is welcome because I'm so lost.

I'm 29 years old, female
Three months ago I was diagnosed with "non-length dependent small fiber neuropathy" after skin biopsy results (ankle and thigh) showed there were zero nerve fibers left in both locations. I have pain consistently in my legs but also random attacks on my face, scalp, ears, collarbone, upper back, arms, and stomach. My neurologist does not seem to be very concerned but I'm feeling the polar opposite of that. During my most recent visit, I explained my newest symptoms and was told that it is progressing to my autonomic nerves. My next appointment is not scheduled until mid March... Should I be concerned? Gut feeling, I think so!

Thanks so much for any response!!!