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Old 12-26-2015, 04:50 PM #11
KnowNothingJon KnowNothingJon is offline
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I eat as much calorically speaking, as I can a day though it cetainly varies. Volume is an issue as my digestion seems compromised, though I have not had testing to confirm that yet. I do plan on discussing it at my next appointment, which is early 1st quarter 2016.

I get there being a general best practice and I have considered adding animal products back in at some point slowly for many reasons, not the least of which is I can't lose weight forever and not all the weight I've lost is the sort you look to lose.

Adjustments are part of the plan. I don't want erratic quick ones, but nor Titanic do I wish to emulate. I have not noticed flares off of quinoa, but who knows, maybe a quinoa/wine combo is responsible for this continue accentuated burn.

I've not let it stop my day. It altered it. Greatly. But my family has been at this for awhile now.

I only couch the start on a path to dietary change because it is not simple for some to change their diet. I ate the same or near same for three plus years before exacerbation plus stubborness said, "okay how much can I affect?"

And away I went with Obi Wan on some fool mission.

And rambling a tad.

For me and fruit, being diabetic we don't get along too well. Fructose spikes me, a lot. I do allow for a banana a day, though as I like the potassium.
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Old 12-26-2015, 06:36 PM #12
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That's definitely worth taking up with your physician. What's the precise problem? Well, regardless, would enzyme treatment help? It helps digest and absorb nutrients. Enzymedica Digest Basic is pretty basic. Just a thought without knowing the precise problem.

Well, you know what I think about the need for animal protein and fat, as long as it's quality. I should have mentioned that organ meats are excellent and essential, though no one should be gorging themselves on it, especially given the amounts of, say, vitamin A in liver. But it's so nutritious. Anyway, what I was going to say that you're completely right about taking it slowly, if you do make the leap. When I went from vegetarian to meat again, I took it very slowly, and I was in my 20s and healthy. It still took some time. Shocking one's system is never a good idea.

As for fructose, more and more studies are showing that it behaves very much like say a beer, and that it is damaging even in healthy individuals. My grandmother was a diabetic and I couldn't communicate to her how rice and fruit were terrible for her. She just couldn't wrap her mind around it: that they would pretty much or ultimately have the same impact on her system as the pastries she would no longer eat, because the doctor told her they weren't good for her. Alas, it took me years to listen about meat and fat, so I can't blame her.

Definitely not an easy task, going from eating the typical NA diet to a healthy one, and taking it slowly is key. I didn't really. I went immediately to no sugar, carbs, fruit, coffee, and it was a miserable week initially, with migraines the likes of which I hadn't even experienced, and I'm a pro. It took two weeks until I felt better. It was a dumb move on my part, but I went at it alone.

Anyway, I'm glad your family is understanding, and that you're keeping on keeping on. My wife is the same, and I'm grateful for that.


Quote:
Originally Posted by KnowNothingJon View Post
I eat as much calorically speaking, as I can a day though it cetainly varies. Volume is an issue as my digestion seems compromised, though I have not had testing to confirm that yet. I do plan on discussing it at my next appointment, which is early 1st quarter 2016.

I get there being a general best practice and I have considered adding animal products back in at some point slowly for many reasons, not the least of which is I can't lose weight forever and not all the weight I've lost is the sort you look to lose.

Adjustments are part of the plan. I don't want erratic quick ones, but nor Titanic do I wish to emulate. I have not noticed flares off of quinoa, but who knows, maybe a quinoa/wine combo is responsible for this continue accentuated burn.

I've not let it stop my day. It altered it. Greatly. But my family has been at this for awhile now.

I only couch the start on a path to dietary change because it is not simple for some to change their diet. I ate the same or near same for three plus years before exacerbation plus stubborness said, "okay how much can I affect?"

And away I went with Obi Wan on some fool mission.

And rambling a tad.

For me and fruit, being diabetic we don't get along too well. Fructose spikes me, a lot. I do allow for a banana a day, though as I like the potassium.

Last edited by DavidHC; 12-26-2015 at 06:53 PM.
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Old 12-26-2015, 09:09 PM #13
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Last month there was study published which demonstrated that individuals can have completely different glucose responses to the exact same food.

If you look at the blog post (Part I) below, you will see a graph of participants 445 and 644 and their blood glucose responses to both a banana and a cookie; and the responses are totally opposite of each other. This is not what you would expect. I think it just demonstrates that this topic is more complicated than our current understanding of the issue. If glucose control is the root cause of our neuropathy, you might get some mileage from buying a glucose meter and performing n=1 experiments.

Study:

http://www.cell.com/cell/abstract/S0092-8674(15)01481-6

Blog Post Part I:

http://caloriesproper.com/personaliz...mic-responses/

Blog Post Part II:

http://caloriesproper.com/personalized-nutrition-ii/
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Old 12-26-2015, 09:24 PM #14
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Here is a 5 minute video summary of the study:

https://youtu.be/Ryc5M3Ciytg
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Old 12-26-2015, 09:44 PM #15
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Thank you so much for sharing this. I'll delve more into it later tonight. Very fascinating, and I suppose unsurprising to some extent, if we take into account differences in gut biom. Well, I didn't expect so much variance, or such divergent reactions. Complex indeed. I would love to get my hands on that algorithm/get plugged into it.

The one thing I would say is that these individuals are healthy, no? - I haven't read the posts in full or the study. If so, so assuming so, that would alters things, I think. Perhaps the sick body, the chronically ill, etc. (very crude, I know) reacts differently and how best to avoid AGEs in such individuals is by reducing sugars, carbs, etc. to avoid the problem. So once there's inflammation, the body can't deal well with glucose, so we're among those who didn't have the best response, or something akin to that. Hopefully I'm expressing myself clearly. What do you think?

It goes without saying that in general this complicates things.



Quote:
Originally Posted by madisongrrl View Post
Last month there was study published which demonstrated that individuals can have completely different glucose responses to the exact same food.

If you look at the blog post (Part I) below, you will see a graph of participants 445 and 644 and their blood glucose responses to both a banana and a cookie; and the responses are totally opposite of each other. This is not what you would expect. I think it just demonstrates that this topic is more complicated than our current understanding of the issue. If glucose control is the root cause of our neuropathy, you might get some mileage from buying a glucose meter and performing n=1 experiments.

Study:

http://www.cell.com/cell/abstract/S0092-8674(15)01481-6

Blog Post Part I:

http://caloriesproper.com/personaliz...mic-responses/

Blog Post Part II:

http://caloriesproper.com/personalized-nutrition-ii/
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Old 12-27-2015, 07:22 AM #16
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Quote:
Originally Posted by KnowNothingJon View Post
I eat as much calorically speaking, as I can a day though it cetainly varies. Volume is an issue as my digestion seems compromised, though I have not had testing to confirm that yet. I do plan on discussing it at my next appointment, which is early 1st quarter 2016.

I get there being a general best practice and I have considered adding animal products back in at some point slowly for many reasons, not the least of which is I can't lose weight forever and not all the weight I've lost is the sort you look to lose.

Adjustments are part of the plan. I don't want erratic quick ones, but nor Titanic do I wish to emulate. I have not noticed flares off of quinoa, but who knows, maybe a quinoa/wine combo is responsible for this continue accentuated burn.

I've not let it stop my day. It altered it. Greatly. But my family has been at this for awhile now.

I only couch the start on a path to dietary change because it is not simple for some to change their diet. I ate the same or near same for three plus years before exacerbation plus stubborness said, "okay how much can I affect?"

And away I went with Obi Wan on some fool mission.

And rambling a tad.

For me and fruit, being diabetic we don't get along too well. Fructose spikes me, a lot. I do allow for a banana a day, though as I like the potassium.
Has the doctor told you that your nerve damage is due to being diabetic?
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Old 12-27-2015, 08:02 AM #17
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Yes. That was easy to diagnose back when, seems at least partially on point as two EMGs (two years apart by two different source) show large fiber damage.


It feels like there is more to the story as progression rolls on with a killer a1c and tight control, butI could also be "short stick" guy. February we see how much small fiber damage there is. My neurologist feels certain there is some, I do too (wouldn't know what to say the level is other than off putting).

I am certain on few things involving pn but this- had I not made the dietary and exercise changes (which had to adjust down this year) over the past two years between shingles and exacerbations in 2015 I think I would've missed more work than I did if having to make the choice to step away, which almost happened anyway.

So... yes, they told me my nerve damage was diabetic, that I am a picker, I'm a grinner, I'm a lover and I'm a sinner- but I sure don't want to hurt no one.

Ramble on Jon.
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Old 12-27-2015, 08:31 AM #18
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Do you have type 1 or 2?
I am just curious because I wonder if something else is going on.
I've always been a lightweight, but sure did enjoy the buzz from my occasional Saturday night glass of wine with my husband. If I drank water in between and paced myself, I could sometimes manage almost 2 glasses.
I started to notice in the summer of 2014 that not only a few sips, but the smell as I was tilting the glass back to drink it would even make me drunk in a terrible way. I literally would be wrecked from 1/4 glass of wine and would have to give it to my husband. I became unable to process alcohol or cope with any type of fumes or chemical smells.
These days I am finding the acetaldehyde/glutathione/liver/microbiota stuff very interesting.

From what I understand, Saccharomyces cerevisiae is what ferments those beverages that so many people can enjoy- but people who have mold allergy/issues cannot.
I am also finding the toxic mold stuff to be slightly convincing.
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Old 12-27-2015, 09:08 AM #19
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Type 2, under control for the moment with meformin and diet. I was close to 300 at one point, 6'2. I am running under 220 now. I know I really don't want to go much below 210 if I can help it, so I am considering a diet change, but like junk diets any diet can become a comfort.

I believe my symptoms are lowered if I mind my parameters flares are few.
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Old 12-27-2015, 09:22 AM #20
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Madisongrrl, Personalized nutrition makes so much sense! I plan on watching more of the videos from the Health Summit.

How would I do that experiment? I understand I would need a glucose meter to see my reaction to sugar probably pre and post meals but is there any more to it? Admittedly, I'm really more right brained.

Quote:
Originally Posted by madisongrrl View Post
Last month there was study published which demonstrated that individuals can have completely different glucose responses to the exact same food.

If you look at the blog post (Part I) below, you will see a graph of participants 445 and 644 and their blood glucose responses to both a banana and a cookie; and the responses are totally opposite of each other. This is not what you would expect. I think it just demonstrates that this topic is more complicated than our current understanding of the issue. If glucose control is the root cause of our neuropathy, you might get some mileage from buying a glucose meter and performing n=1 experiments.

Study:

http://www.cell.com/cell/abstract/S0092-8674(15)01481-6

Blog Post Part I:

http://caloriesproper.com/personaliz...mic-responses/

Blog Post Part II:

http://caloriesproper.com/personalized-nutrition-ii/
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