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Old 12-27-2015, 11:06 AM #21
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Originally Posted by KnowNothingJon View Post

It feels like there is more to the story as progression rolls on with a killer a1c and tight control, but I could also be "short stick" guy. February we see how much small fiber damage there is. My neurologist feels certain there is some, I do too (wouldn't know what to say the level is other than off putting).
You might be right, that there could be more to the story.... I think it's very easy for doctors to attribute SFN symptoms to diabetes. Do you have symptoms on your face and trunk too?
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Old 12-27-2015, 11:28 AM #22
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Originally Posted by Healthgirl View Post
D
I started to notice in the summer of 2014 that not only a few sips, but the smell as I was tilting the glass back to drink it would even make me drunk in a terrible way. I literally would be wrecked from 1/4 glass of wine and would have to give it to my husband. I became unable to process alcohol or cope with any type of fumes or chemical smells.
These days I am finding the acetaldehyde/glutathione/liver/microbiota stuff very interesting.

From what I understand, Saccharomyces cerevisiae is what ferments those beverages that so many people can enjoy- but people who have mold allergy/issues cannot.
I am also finding the toxic mold stuff to be slightly convincing.
I had a friend like that. If he had one drink, he would totally black out. So he rarely ever drank and smoked weed instead. Those were the good old days of college. He always called it an alcohol allergy. I'm sure it was some kind of intolerance. I don't think he ever got it figured out.

I'm convinced by the mold stuff too. The more Dr. Shoemaker stuff I've read and all the studies that I pulled off pub med, there is definitely something here.

Have you had you had your C4a level tested? It's way cheaper than the mold test. I think mine was less than 200 dollars through Quest and my insurance covered most of it; so it cost me 4 dollars. I've been told that if your result is sky high, then it would be wise to run the mold test. Mine was higher, but not sky high. I've attached my result.
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File Type: png C4a Level.png (18.7 KB, 725 views)
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Old 12-27-2015, 11:43 AM #23
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Madisongrrl, Personalized nutrition makes so much sense! I plan on watching more of the videos from the Health Summit.

How would I do that experiment? I understand I would need a glucose meter to see my reaction to sugar probably pre and post meals but is there any more to it? Admittedly, I'm really more right brained.
Well, there are some people on this board that have made themselves experts on this topic because they have performed these experiments. Definitely go back and look at some of Janie's older posts.

Here is a good article that will give you a framework to follow for your glucose experiment:

http://chriskresser.com/how-to-preve...isease-for-16/

You can buy a glucose meter off amazon. There is a smoking deal right now on this one; it's $4.21:

http://www.amazon.com/TRUEResult-Blo...se+starter+kit

You will also have to buy more test strips.
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Old 12-27-2015, 12:30 PM #24
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Madisongrrl,

What mold test are you talking about? Is it a specific one? Thinking back about and searching in my past, spurned on by your searches into your own, I now suspect possible environmental exposure, mold to be precise. Before all this started, I recall have mold all over the bathroom in our old house, the pink and black stuff. That it was persistent and just would come back when we'd even use the most powerful chemicals. That's when strange things started happening: I started getting these strange sores on the bottom of my toes that would last weeks to months and would be, well, soar; and my IBS-C became even worse and worse. I'm starting to research all this now, but I'm not at all knowledgeable in the area. It seems that you know your way around it, so if you have a leads for me to follow, I'm appreciate it.


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Originally Posted by madisongrrl View Post
I had a friend like that. If he had one drink, he would totally black out. So he rarely ever drank and smoked weed instead. Those were the good old days of college. He always called it an alcohol allergy. I'm sure it was some kind of intolerance. I don't think he ever got it figured out.

I'm convinced by the mold stuff too. The more Dr. Shoemaker stuff I've read and all the studies that I pulled off pub med, there is definitely something here.

Have you had you had your C4a level tested? It's way cheaper than the mold test. I think mine was less than 200 dollars through Quest and my insurance covered most of it; so it cost me 4 dollars. I've been told that if your result is sky high, then it would be wise to run the mold test. Mine was higher, but not sky high. I've attached my result.
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Old 12-27-2015, 01:11 PM #25
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Interesting Healthgirl. I've always been an alcohol light weight but in more recent years a glass of wine would make me feel horrible for at least 2 days. I chalked it up to getting old and quit drinking completely. Even the alcohol base used in Bach Flowers does not agree with me and can trigger burning in my legs.

I was allergic to mold and mildew when I was young but I did not test positive on the skin allergy test a few years ago. I have little confidence in those skin tests anyway. For the past 24 years I had worked in a media center and school filled with mold and mildew. Makes me wonder... I also am extremely sensitive to any type of fumes and chemical smells.

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Do you have type 1 or 2?
I am just curious because I wonder if something else is going on.
I've always been a lightweight, but sure did enjoy the buzz from my occasional Saturday night glass of wine with my husband. If I drank water in between and paced myself, I could sometimes manage almost 2 glasses.
I started to notice in the summer of 2014 that not only a few sips, but the smell as I was tilting the glass back to drink it would even make me drunk in a terrible way. I literally would be wrecked from 1/4 glass of wine and would have to give it to my husband. I became unable to process alcohol or cope with any type of fumes or chemical smells.
These days I am finding the acetaldehyde/glutathione/liver/microbiota stuff very interesting.

From what I understand, Saccharomyces cerevisiae is what ferments those beverages that so many people can enjoy- but people who have mold allergy/issues cannot.
I am also finding the toxic mold stuff to be slightly convincing.
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Old 12-27-2015, 01:19 PM #26
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David,

If you want to take a deep dive into mold, here are some resources:

This is Dr. Shoemaker, who is an authority on the topic. You can get all his published papers for free from his website.

http://www.survivingmold.com/about/r...-shoemaker-m-d

Here is an interview with Dr. Shoemaker; there is a lot of info here

http://chriskresser.com/dr-ritchie-s...onse-syndrome/

A good summary:

http://chriskresser.com/5-things-you...-mold-illness/

Some of my older NT posts:

http://neurotalk.psychcentral.com/post1171064-7.html

http://neurotalk.psychcentral.com/post1161318-2.html

http://neurotalk.psychcentral.com/post1161695-8.html

In my last link above, I link to a place called Real Time Labs. This is the laboratory that does the toxic mold testing. This is very different than calling a company to your house to do mold testing - they only test for mold counts and things of that nature.

The test from Real Time Labs is expensive, which is why the cheaper C4a test is ordered first.
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Old 12-27-2015, 01:27 PM #27
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Quote:
Originally Posted by pinkynose View Post

I was allergic to mold and mildew when I was young but I did not test positive on the skin allergy test a few years ago. I have little confidence in those skin tests anyway. For the past 24 years I had worked in a media center and school filled with mold and mildew. Makes me wonder... I also am extremely sensitive to any type of fumes and chemical smells.
I listened to this podcast a few weeks ago. It was the best explanation that I've ever heard as to why people have these type of sensitivities. It's definitely multi-factorial.

http://powerhealthtalk.com/pht-093-m...-it-exists.htm
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Old 12-27-2015, 01:33 PM #28
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Thank you for this wealth of information. I'll explore it all. I'll also check out Real Time Labs, which I presume test the individual rather than the home? Well, I'm sure it's all there. Already listening to the interview. Thank you, and so glad to hear (from your other post) that you're starting to get your life back.


Quote:
Originally Posted by madisongrrl View Post
David,

If you want to take a deep dive into mold, here are some resources:

This is Dr. Shoemaker, who is an authority on the topic. You can get all his published papers for free from his website.

http://www.survivingmold.com/about/r...-shoemaker-m-d

Here is an interview with Dr. Shoemaker; there is a lot of info here

http://chriskresser.com/dr-ritchie-s...onse-syndrome/

A good summary:

http://chriskresser.com/5-things-you...-mold-illness/

Some of my older NT posts:

http://neurotalk.psychcentral.com/post1171064-7.html

http://neurotalk.psychcentral.com/post1161318-2.html

http://neurotalk.psychcentral.com/post1161695-8.html

In my last link above, I link to a place called Real Time Labs. This is the laboratory that does the toxic mold testing. This is very different than calling a company to your house to do mold testing - they only test for mold counts and things of that nature.

The test from Real Time Labs is expensive, which is why the cheaper C4a test is ordered first.
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Old 12-27-2015, 02:35 PM #29
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Maybe some of us could rent a place and get some appointments with Dr Rutherford.... Definitely for now I'm looking into those glutathione infusions (and hope I don't have a chemical sensitivity to it.) I also loved his podcast on neuropathy.

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I listened to this podcast a few weeks ago. It was the best explanation that I've ever heard as to why people have these type of sensitivities. It's definitely multi-factorial.

http://powerhealthtalk.com/pht-093-m...-it-exists.htm
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Old 12-27-2015, 02:51 PM #30
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They have a lot of good shows in their library, I need to make some time to download all their neuropathy podcasts since it looks like there are several.
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