Reply
 
Thread Tools Display Modes
Old 12-30-2015, 03:15 PM #1
Blue7 Blue7 is offline
Junior Member
 
Join Date: Jul 2015
Posts: 19
8 yr Member
Blue7 Blue7 is offline
Junior Member
 
Join Date: Jul 2015
Posts: 19
8 yr Member
Question What happens if my skin biopsy comes back negative, but I still have symptoms?

Would I still be considered to have neuropathy, or something else?
Blue7 is offline   Reply With QuoteReply With Quote
Old 12-30-2015, 09:06 PM #2
madisongrrl's Avatar
madisongrrl madisongrrl is offline
Member
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
madisongrrl madisongrrl is offline
Member
madisongrrl's Avatar
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
Default

If this is the case then you will be in my camp. Most neurologists will not say you have SFN. They will medically code it as a "disturbance of skin sensation", which is absurd, IMO.
__________________
  • Gabapentin, Nortriptyline, & Low Dose Naltrexone
  • Methylcobalamin/Methylfolate, & Vitamin D3/K2
  • Phosphatidyl Choline, Phosphatidyl Serine & Probiotics
madisongrrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zkrp01 (12-31-2015)
Old 12-31-2015, 08:05 AM #3
pinkynose's Avatar
pinkynose pinkynose is offline
Member
 
Join Date: Jul 2015
Posts: 506
8 yr Member
pinkynose pinkynose is offline
Member
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 506
8 yr Member
Default Another camper!

Quote:
Originally Posted by madisongrrl View Post
If this is the case then you will be in my camp. Most neurologists will not say you have SFN. They will medically code it as a "disturbance of skin sensation", which is absurd, IMO.
Yup same camp! My neurologist corrected me when I used the term symptoms. He said they're sensations.
__________________
"Sometimes I've believed as many as six impossible things before breakfast." Lewis Carroll
pinkynose is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zkrp01 (12-31-2015)
Old 12-31-2015, 08:24 AM #4
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default You may still have neuropathy.

It may just not be "small-fiber neuropathy" as defined by the five and ninety-five percentile standards of the McArthur protocols (which in my opinion are rather arbitrary and limiting).

I've written a LOT about this in the past; just this morning I posted this:


http://neurotalk.psychcentral.com/thread230440-2.html
glenntaj is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
echoes long ago (12-31-2015), pinkynose (12-31-2015), zkrp01 (12-31-2015)
Old 12-31-2015, 10:08 AM #5
madisongrrl's Avatar
madisongrrl madisongrrl is offline
Member
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
madisongrrl madisongrrl is offline
Member
madisongrrl's Avatar
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
10 yr Member
Default What happens if my skin biopsy comes back negative, but I still have symptoms?

I should also add that the two general neurologists who did my physical exam found areas of temperature loss on my upper body. They said it was small fiber neuropathy.

Later, the neuromuscular doctor only did a punch biopsy test on 2 spots of my right leg. The punch biopsy test was analyzed in house at UW Teaching hopsital and did not look at my sweat glands. I did not have a QSART test either. My guess is that it would have confirmed SFN since parts of my body are not sweating properly.

The neuromuscular doctor emailed me with my results, told me they were negative for SFN, and told me to get a referral to the pain clinic.

Either way, positive or negative results, he would have told me to go to the pain clinic. At UW they are only interested in diagnosing it and sending you on your way.
__________________
  • Gabapentin, Nortriptyline, & Low Dose Naltrexone
  • Methylcobalamin/Methylfolate, & Vitamin D3/K2
  • Phosphatidyl Choline, Phosphatidyl Serine & Probiotics
madisongrrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
beatle (12-31-2015), zkrp01 (12-31-2015)
Old 12-31-2015, 12:46 PM #6
beatle's Avatar
beatle beatle is offline
Member
 
Join Date: Nov 2013
Posts: 424
10 yr Member
beatle beatle is offline
Member
beatle's Avatar
 
Join Date: Nov 2013
Posts: 424
10 yr Member
Default

Quote:
Originally Posted by madisongrrl View Post
The neuromuscular doctor emailed me with my results, told me they were negative for SFN, and told me to get a referral to the pain clinic.
This was my experience as well.
beatle is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
If skin Biopsy and Emg are negative....... invisable Peripheral Neuropathy 17 04-05-2021 02:32 AM
Result of Skin Biopsy is Negative Idiopathic PN Peripheral Neuropathy 37 02-13-2013 08:01 AM
Skin Biopsy Negative sbvcrn Peripheral Neuropathy 6 11-19-2008 09:20 AM
My skin biopsy was negative lailavia Peripheral Neuropathy 16 11-11-2007 03:11 PM


All times are GMT -5. The time now is 04:49 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.