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Yes! Have your daughter go with you! It helps so much to have someone else there to back up the evidence that you are still in a lot of pain and that you are not affected mentally by the medication.
My PCP has known our family for 15 years, since he opened his practice, or he said he would never have prescribed this much medication, but a pain doctor should be comfortable with even higher doses as they are sometimes necessary. We see each other every month and make a lot of small talk since there are rarely changes so he knows that I am not in "La La Land". When I had my minor foot surgery the anastheisiologist came in and introduced himself. He fastened on my accent and asked where in NYC I was from, I told him I was from Philly, not NY. We proceeded to have a rapid fire conversation about the pros and cons of homeschooling, as I said I had homeschooled my 5 and was finishing up with my youngest. At the time I was surprised that he spent so much time with me and was so interested, asking very detailed questions. Later I wondered if he was trying to see how mentally sharp I was after seeing my medications list. Everything I have read says that it is very important in pain management to have family support, you should never go by yourself if you can help it. I asked my doctor why so many of the new doctors I meet with are put off by the morphine. Not all, most who are familiar with the pain of an advanced neuropathy or neuromuscular disease, are fine with it but some react badly, acting suspicious and asking strange questions. "Why are you taking that?" seems like a particularly idiotic question from a doctor. He said that they are trained in medical school to be suspicious of people on pain medication, and it is a prejudice that is very strong. They are also afraid of losing their license although such cases are very rare. This is so maddening because I really believe a higher dose would help you. i have read that if methadone is tried and poorly tolerated at first sometimes you can return to it later without the side effects, but it seems stupid not to continue working with the morphine. Last edited by Susanne C.; 03-10-2016 at 02:55 PM. |
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