I hope it's ok to ask about this. I have two unclear diagnoses for whatever illnesses I have - Functional neurological disorder and Central sensitisation disorder. It will be 3 years in May. What is clear to me now is that the nerve pain is moving over my body and steadily becoming established in both hands and feet.

Originally I had neuropathic pain over most of my body and then my right side became increasingly painful as compared to my left. I now have muscle wastage in my right leg. The thing that has made life bearable since I have been ill was that my left side was only in minor pain most of the time enabling me to manage stairs, etc. I regularly saved myself from falling at home with my stronger left arm

In the last few months I've watched and felt as my left foot and now hand have rapidly developed severe neuropathic pain. I feel pretty despairing about this latest development. I can't find much on the internet about progressive neuropathic pain nor can I find much about prognosis. Medical people have not been helpful when i have asked about this. I know this could be a sensitive issue to raise. I hope it's OK that I have. Any thoughts would be appreciated.

I empathize with you in your fear of what is happening. There really is such a lack of information. As mine was progressing, I was told that it usually progresses to a point and then calms down. While it was advancing, my life stopped for about 6 months. I could not even lift a piece of silverware without it feeling like a 10 pound weight. My entire body was ravaged. I couldn't drive, fold laundry, cook, barely chew my food. Everyday was hell and the nights were even worse. I can now do most things. I have to pace myself and not get upset when I have bad days in order to stay positive. All you can do is to try to eat healthy, try to move around when you can, and I highly recommend meditation and breathing techniques.

The word progressive is in my DX as well and indeed the symptoms changed many times until they have settled down. I am about three years in and I would think that you are due, or at least that is what I hope for you. Don't worry if you have to get a walker, they are better than smacking the pavement. Eat well and exercize, get sleep, and try to make the best of life until things change. My walker is in the closet and isn't coming out until I am on a straight Tapioca pudding diet many years from now. Good Luck, Ken in Texas.