Todd Levine MD. Well worth watching for PN;https://www.youtube.com/watch?v=pcdKhKSLca8
*Narcotics are discussed near the end.

Small Fiber; https://www.youtube.com/watch?v=6FidaYDO4YI
*Near the end of the video he discusses IVIG and how it can regrow the nerves in some cases.

Cliffman

Thank you for this, Cliffman. Much appreciated. Nice summaries and general overviews. I think my neuro wanted me to see him, and after this I'm seriously thinking of reaching out and seeing if I can travel there for some quicker and more aggressive diagnostic testing. This is how a physician should be. Perhaps I can contact him directly. I wonder if they do thorough testing and fat pad biopsies for Amyloidosis too, among other things, say lip biopsies and GI ones, even if not in house.

David I think he would be worth seeing...here's a link to the Phoenix site and they have an infusion center; http://www.phoenixneurology.com/staff/levine.php

Cliffman

I just watched the SFN video and will now watch the PN video. Thank you Cliffman for that great resource!

Yup, tracked him down. I'll likely contact him and see about possibly seeing him. would be costly to fly to Phoenix and spend a week having tests done, but perhaps worth it, if I can know what's happening and possibly go ahead with IVIG. Then again, everything I've been doing myself naturally has worked quite well so far. What I'd like most is another biopsy at the one-year mark or almost one-year mark, to see if there has been improvement. Though I did just have a calf biopsy, a single spot.

Thank you again for this. Both videos were worth watching. Perhaps my favorite part was when he stated that the best chance one has is by getting the body to the healthiest state it can be, making it most conducive to nerve regeneration. I think that's what I've done and the improvement indicates that, though, of course, I can't be sure, and I could just be experiencing the calm before the storm...not to be too negative.