Quote:
Originally Posted by JoannaP79
Hi Chris,
No treatment. I'm on Max dose gabapentin. Been back and forth to rheumatologists / neurologists over past year. Mine is now every where, every single part of the body imaginable. But, mine came on thick and fast. Everyone's is so different. You can't think that yours will follow that course. My stomach has settled down now at least and appetites good. Gabapentin helps with that alot.
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JoP79... Sadly, You sound just like me. My gastrointestinal problems came on severely and suddenly along with body-wide nerve pain and miscellaneous paresthesia - all at the same time and very dramatic. I lost 60 pounds in three months. If I hadn't been overweight to begin with I'd have been skin and bones. I couldn't eat anything because of constant nausea. Even the sight or smell of food was foul to me. It seemingly is linked to parvo virus b19, although the severity of what I experienced is not typical. I also had severe joint pain and was light headed/dizzy. It was a systemic breakdown of sorts. Years later my gasto symptoms have improved but not completely. I'm left what is felt to be a "central sensitization" that includes IBS symptoms. Thank goodness there's a place this to dump our experiences because it's so affirming for what otherwise can not be fathomed.