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Old 02-07-2016, 10:40 PM #11
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madisongrrl madisongrrl is offline
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Quote:
Originally Posted by Healthgirl View Post
I am glad I have the opportunity to go to him and I'm not sure if he is full of beans but according to him, I should feel an improvement by 3 weeks. I will be the guinea pig for all of us here who have this deranged illness and feel that it has to be something toxic. I am still convinced it is microbial/chemically induced.
I've done some reading on this also and it's pretty interesting stuff. Thanks for being a guinea pig.
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Old 02-07-2016, 11:20 PM #12
DavidHC DavidHC is offline
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Hi Healthgirl,

Thanks for your response. Glad to hear it, but I get it. I'm not sure precisely when I'll take the AC, but it won't be closer to meals, likely between lunch and dinner, which would give me about 4-5 of time. What was your dosage? I worry more for constipation. Did you have any issue there? From what I've read it doesn't bind well to inorganic substances, so, say, heavy metals, but to organic ones.

I'm glad this pricey doc is keeping an eye on vitamins and minerals. It's the least he can do. Like I said, I've read good things about Cholestyramine, and it seems it's relatively harmless, considering what else people with our issues have on offer as far as Rx goes. I may get to cholestyramine myself, since like you I'm also convinced it all began with a infection in my case too.

Well, I wish you the best of luck, also because your children seem somehow implicated in what is happening to you. I'm sorry for this, and hope you find some answers. I'll be rooting for you. And I do appreciate you guinea pigging yourself, if I may use it as a verb.


Quote:
Originally Posted by Healthgirl View Post
Hi David,
I only took the activated charcoal 3 times. I have to say it was extremely helpful for abdominal pain, but I didn't feel comfortable using it at high doses everyday because it isn't prescribed that way and I already have to be careful with malabsorption. I still have that concern with the cholestyramine, but this doctor is going to keep track of my vitamin/mineral levels. He is extremely expensive and I am skeptical, but trying to be hopeful and remain positive.
I am glad I have the opportunity to go to him and I'm not sure if he is full of beans but according to him, I should feel an improvement by 3 weeks. I will be the guinea pig for all of us here who have this deranged illness and feel that it has to be something toxic. I am still convinced it is microbial/chemically induced.
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