Funny you posted that page....that is MY doctor that wrote that article...Dr. Julius Birnbaum!! He's been my doctor for 8+ years now...saved my life!

Anyway, keep in mind that those labs for APS CAN show negative, then positive, then negative again. If it has been a while since being checked, it might be worth repeating.

Being that the steroids helped CONFIRMS that it is inflammatory based. And I agree with you completely that is it autoimmune. Is any of your doctors even interested in looking for that inflammation that the steroids is helping?? I know there is only so much they can do, but they have right in front of them a treatment that helps, so that should point them at least in the direction of the cause. Backwards from the normal approach, but it still works and has been used in medicine many times.

Is the livedo still there? Both legs? Is it ever on your upper body or arms?