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07-05-2007, 07:30 PM
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Member
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I think the infusion went quite well. It lasted for 4 1/2 hrs because they put it in slowly today to see how I would react. They put the Benedryl in first (they thought I'd get really tired but I didn't) so I was awake for the whole thing. I didn't have any side effects.....at least not yet anyway. So I'm very happy about that!
For those of you getting IVIG, they used Octagam today 40g/800mil over 4 1/2 hrs. My husband went with me and stayed for the first 2 hrs and then had to head to work, but then my friend came and stayed the rest of the time and drove me home. I'm tired now but think it was just a very stressful day catching up to me. I'm drinking my water and will continue to do so. They ordered Subway sandwiches, chips and drinks for all of us IV'ers, that was nice. My dr. told me that the IVIG cost $3,000 for each infusion, but when I signed the paperwork today it says the IVIG costs $10,670! Man that stuff is pure gold! I'm sure they don't get that much from the insurance company.....but still.....that stuff is expensive! Anyway.....I have my next appt. next Thurs. Thanks for all your info and suggestions...I sure appreciated them today! Roxie 
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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07-05-2007, 07:44 PM
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Senior Member
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Roxie,
I was just thinking about you and wondering how it went. I can't believe you haven't passed out from the benedryl. I'm just so glad you are able to have this stuff and that you are tolerating it so well. This is good news indeed! Keep us updated on how you are feeling. Billye |
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07-05-2007, 07:47 PM
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HI Billye!
I'm happy too with the ease of today. As for the Benedryl.....meds have different reactions on me than 'normal' people, for some reason. Things that knock others out keep me awake! Very strange! It's always been that way. Roxie
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. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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07-05-2007, 08:24 PM
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Wise Elder
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Hoo Roxie.
Good going!!!! You lived!!!!! lol I knew you would breeze through it. So now you know what IVIG is. Be well. Melody
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. CONSUMER REPORTER SPROUT-LADY . |
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07-05-2007, 08:29 PM
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Member
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HI Mel!
Yep I made it! Thank Goodness! I'm SO glad I didn't have any of the side effects! There was a lady getting an infusion the same time I did that's been getting them since 1999!! She's now only having to take them once every 3 weeks......but still....that's one HECK of a long time! How long has Alan been taking them??? Roxie
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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07-05-2007, 08:30 PM
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Magnate
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a HAPPY BOREDOM! Yes it's tedious but, in the long term when you respond, to it, you will feel ever so MUCH better!
Sounds like you at least got something GOOD to eat! That makes a difference in it all. Get some rest now, process the whole thing and let those little IG 'nanobots' go to work. s - j
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07-05-2007, 08:33 PM
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Member
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HI J,
I tried to lay down to rest when I got home but couldn't sleep......so just vegging out in front of the computer now....but will veg tomorrow too. I hope those expensive nanobots do their thing for me!  Roxie
__________________
. Dx'd with Spinal Arthritis 09 Upper and lower Spinal Cord Stimulator surgery Replaced IV port 09 Had surgery for IV port for IVIG infusions 07 Halo 360 & 90 procedure for Barrett's esophagus Dx'd Chronic Axonal Neuropathy & Myopathy June 07 Dx'd IC May 2006 (after suffering for 25+ yrs!) Gall bladder surgery Aug. 2004 Gastric Bypass Dec. 2004 Dx'd: Barrett's Esphogus July 2004 Bladder surgery 2000 Dx'd: IBS 2000 Hysterectomy (fibroids) 1999 Laminectomy 1989 Dx'd: Degerative Disk Disease 1989 Cyst removed from my ankle -twice 1986 |
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I had my first IVIG infusion today..........
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