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Old 07-05-2007, 07:30 PM #1
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
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Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Default I had my first IVIG infusion today..........

I think the infusion went quite well. It lasted for 4 1/2 hrs because they put it in slowly today to see how I would react. They put the Benedryl in first (they thought I'd get really tired but I didn't) so I was awake for the whole thing. I didn't have any side effects.....at least not yet anyway. So I'm very happy about that!
For those of you getting IVIG, they used Octagam today 40g/800mil over 4 1/2 hrs. My husband went with me and stayed for the first 2 hrs and then had to head to work, but then my friend came and stayed the rest of the time and drove me home.
I'm tired now but think it was just a very stressful day catching up to me. I'm drinking my water and will continue to do so.
They ordered Subway sandwiches, chips and drinks for all of us IV'ers, that was nice. My dr. told me that the IVIG cost $3,000 for each infusion, but when I signed the paperwork today it says the IVIG costs $10,670! Man that stuff is pure gold! I'm sure they don't get that much from the insurance company.....but still.....that stuff is expensive!
Anyway.....I have my next appt. next Thurs. Thanks for all your info and suggestions...I sure appreciated them today! Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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