I'm not sure you saw the post I made a couple days ago to your other thread about doctors not searching harder. But I brought up the vascular side of this again...which I think needs to be looked at, after hearing more about your symptoms. Has anyone done any investigation into this yet?

Sorry i never saw your post on my previous thread. I will look. I don't seem to receive notifications and it's hard to log in from my iPad.

Sorry to sound ignorant but when you say vascular do you mean some sort of Vasculitis or vascular as in blood flow/ veins? I chose my new rheumatologist because he had a special interest in Vasculitus and he's been thorough where investigations have been concerned. The only outstanding test he's waiting to get back is for Behcets and he thinks I did have a vascular rash at one stage. But my cryoglobulins were normal in my CSF a year ago so unless the rash returns or I get a positive for Behcets he doesn't think I have any form of Vasculitus now.

Both my parents died suddenly from heart failure due to atherosclerosis - both at 73. Both had the signs of vascular dementia - which killed my grandfather and my uncle too, in the run up to their deaths. Following a couple of "functional" (a disparaging and mysoginist term I've been told!) left side hemiparesis episodes last year I was given a carotid duplex last August and was found to have mildly diseased carotid arteries. I believe this is early atherosclerosis. My BP keeps going up and up so now on two BP meds. This all concerns me a lot but my doctors seem not to be concerned outwith their own specialist areas and my heart is okay from ECGs despite arrhythmia from ectopic beats.

Sorry Enbloc probably too much of a reply but I don't have trouble with my varicose veins and haven't had any kind of thrombosis to date. Mat X