Originally Posted by Marlene

In my husband's case, yes. Took a while though and he did a lot to heal. Chiropractor helped with his gait and balance. Actually corrected his gait in one session. He also practiced his balance on a balance board. Reflexology really helped to loosen up his feet and ankles. Early on he used the Rebuilder. Helped with pain and flexibility. Of course, B vitamins, ALA, Mitochondrial support formula and others. Make sure you are replacing your electrolytes. Calcium and magnesium were helpful for him. Stretching is very important.

We've thrown everything but the kitchen sink at him. I am so grateful he was able to heal as much as he did. He's still has issues but no where near they were in 2002.

Originally Posted by ElaineD

I had every test under the sun, many times......Nerve conduction is the gold standard, but I had: MRis of everything, spinal tap, every blood test known to science, several peripheral blood flow tests, and maybe more.

My PN is most likely the result of my own Immune System mounting an attack on my nervous system. It also took out my saliva/tears/moisture glands, has attacked my lungs (small airway obstruction) my ears (Meniere's) and I have small fiber neuropathy, and bleeding and inflammation of my bladder (Interstitial cystitis), AND there are more but I'm tired of thinking about them.

I have Primary Immune Deficiency, and my Immune system, when doesn't attack foreign infections DOES ATTACK my own body.

I have a transfusion of the immune factor I need, every month, and will for the rest of my life.

I tried Methyl B-12, for almost two years, with no help.

Exercise in a warm pool and on the Nu Step help....but My legs are atrophying and this PN is serious serious stuff.

Best wishes to you all. ElaineD

Originally Posted by ElaineD

I'm afraid my problems only increased. I tried Physical Therapy but didn't have enough improvement in five weeks of sessions, twice a week with practice between.

I did however, get leg braces, which have vastly improved my balance and walking.

I have PROFOUND PN with two of the three major leg nerves GONE, and the third one severely damaged.

I start Physical therapy tomorrow to learn how to get maximum results.

I have had the braces for three weeks, and hate to take them off to go to bed.

Best wishes, ElaineD