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Old 05-27-2016, 04:16 PM #21
JoannaP79 JoannaP79 is offline
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JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
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Originally Posted by Lukesmom View Post
My PN symptoms developed 2 nights after a lumbar epidural injection. I woke up in the middle of the night and thought someone came in and chopped off my big toe...symptoms quickly progressed up my feet and legs during the following days and weeks.( I think I gave my details in an earlier post.) This occurred October of 2013, unfortunately I am still struggling with PN. I would definitely find out what type of steroid they would be using. I received Kenolog which is not labeled for epidural use. It contains benzyl alcohol which is a neurotoxin. Many doctors still use it routinely. I have idiopathic SFN and large fibers also involved. Not sure if it was the trauma of the injection or an autoimmune response. No one on this forum at the time had any ideas or similar situation. I have been to many doctors since this began and only one neurologist would say that it was a direct result of the injection. She has since moved on as this was at the medical teaching hospital in my state.
Hi Lukesmom,

Sorry to jump on the back of another thread but I read what you said about Kenolog being a neurotoxin. Is Kenolog a form of steroid? I have had intravenous hydrocortisone. I dont know what brand it was. When it entered my blood stream it immediately burnt my private area and the top of my head like someone had just set both ends on fire (excuse the visual). Is this why? Does this mean steroids are dodgy as well in terms of neuro toxicity.
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Old 05-27-2016, 04:17 PM #22
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Originally Posted by JoannaP79 View Post
Hi Lukesmom,

Sorry to jump on the back of another thread but I read what you said about Kenolog being a neurotoxin. Is Kenolog a form of steroid? I have had intravenous hydrocortisone. I dont know what brand it was. When it entered my blood stream it immediately burnt my private area and the top of my head like someone had just set both ends on fire (excuse the visual). Is this why? Does this mean steroids are dodgy as well in terms of neuro toxicity.
Should have added - intravenous steroids are considered an option in certain inflammatory neuropathies. This is something my neuro has discussed.
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