Hey everyone, I'm here to just ask if you guys think I have MS. I'm a 23 year old female. My journey starts on January this year. On the first week, I was sick with a cold, the week after I was got extremely stressed. I noticed I didn't have the appetite but still ate the same amount of food. The next week, I noticed that I was loosing weight. This concerned me as I'm not the type to loose weight right away. I got a whole abdomen ultrasound, all results came out fine. I got tested for my thyroid levels, they came out fine as well. I could say that since the check up I haven't been loosing weight anymore, I've been gaining but very little. My stool has been very weird too. At the time of my check up, January 26, I noticed some muscle twitching. They started on my legs. As of writing, the twitching has progressed everywhere. It does not happen all day, around 10 times in an hour. I've also experienced some muscle weakness and loss of muscle tone. Just this morning, I was standing in line and my knees started to shake like crazy. I couldn't make it stop. There are moments also that the right side of my brain tingles. There are times as well that there is muscle pain on my right arm and right leg (not at the same time) sometimes, my left leg feels really numb. I'm so lost on what this could probably be. I know Peripheral Neuropathy is usually caused by an underlying problem but I don't think I have that. Could I possibly have this?

Noey, I'm sorry your having these problems. Unfortunately, I don't think there's any way to tell what you have from your description. You really need to find a good neurologist who will explore your symptoms in detail. It is often a long process to find out what you have - and often even a longer process to find the cause and/or an effective treatment.

The one thing I can tell you is that viruses can set off or make these neurological conditions worse - and so can anxiety/stress. So, it is really important to find a way to relax and de-stress. It can be very difficult, but it can be very helpful as well.

Thanks so much for the reply! I'm gonna get tested for vitamin deficiencies and I'm really just hoping that's the problem. God bless!

If it makes you feel better none of the symptoms you describe are things I encountered with PN.

Mine started with a sensation very similar to a cell phone buzzing inside my ankle. It would buzz for about 1 second every 5 seconds and would continue 24/7. That progressed into pins and needles / burning sensation.

It really sounds like finding a good doctor/neurologist is your best bet. They will help you narrow down possibilities. I'm 18 months into my symptoms and still don't have a positive diagnosis, so be don't stress out about not knowing right away.

Finding a way to calm down and de-stress is critical. While they say stress can't trigger a flare up on it's own, it can exacerbate your existing symptoms and make life miserable for yourself

http://neurotalk.psychcentral.com/thread232531.html


My comments for now are mostly for the new members. I found NT as I was looking for some support to help me with the Femoral Nerve Damage I ended up with due to hip replacement in 2010. I live with 80% numb thigh BUT the burn/tingle I had for 5 yrs is now gone. I posted that I found thru a naturopath 4 nerve damage suggestions and I took 2 after my research...they are Inosine and Sphingolin and after 3 months on these 2 the Burn/Tingle is gone. After research I found that Sphingolin is used in MS support.

The link I posted above is info from Jack Kruse and he suggests Resveratrol...on the grape and pine bark antioxidants, I've been taking both these starting with pine bark in 1995 and then going to grape seed ex now headed into my 21st yr. These antioxidants have been short of a miracle for my health. The hip replacement nerve damage is another animal I now live with.

Now, I have talked about a friend who took statins for 30 yrs and has lived with 15 yrs of nerve damage. She's done the doc prescribed drugs over the 15 yrs and now off the drugs and finding pretty good relief being on grape seed ex now for about 5 yrs.

So these are my stories and my sister is challenged with MS, first signs of it when she was in her early 20's and then it went into a long remission and she did a lot of life but now it's a different story...She's 68 soon. She is a good friend. Sugars/carbs were not her friends.

I've read many stories here and many try meds and supplements. Good wishes to all in finding their relief.

Thanks so much! The cellular phone is quite similar to my twitching actually. It's like my muscles vibrate. It happens so fast I can't even observe them. I'm so scared it might be a brain tumor, ALS or MS. But I totally agree on the fact that I need to destress and not think about it so much. Rancar, were you tested for vitamin deficienies too?

I've been tested for vitamin deficiencies, blood sugars, thyroid, Lyme disease, heavy metals, MRIs of my brain and spine, nerve conduction velocity tests, pin pricks etc.

Hopefully you will get tested and discover something early that is treatable and reversable.

What, and they still haven't figured out what's wrong with you as well? This is making me so anxious. I've had so many sleepless nights.

They don't have an exact diagnosis in the sense of a name to my disease, but now I know it is an auto-immune deficiency that causes my body to get confused and attack nerve endings, likely as a result of getting vaccinations last year. Putting an exact name to it isn't going to change the treatment options in any meaningful way.

Believe me, I too have many sleepless nights worrying about the progression of my condition.

The sleepless nights and constant worrying don't help me at all, and I doubt they are helping you either. By getting the tests and seeing qualified professionals you are doing the right thing. Worrying about it now isn't going to change a thing and it could hurt by slowing down your bodies ability to heal.

Noey, sorry you are experiencing these symptoms. My small fiber neuropathy, like Rancar also started with painful sensations like pins and needles in my calves and burning under both feet. You wrote you had some blood work and an Ultrasound that came back normal. That is great! Did you have an MRI of your brain? This test and a spinal tap will help rule out MS. Please keep us posted.