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Old 02-28-2016, 12:16 PM #1
banjanti banjanti is offline
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First of all thanks Chris for sharing! I've traveled a lot, climbed Himalayas so to get that diagnosis in my age is pretty devastating. I could live with what I have now, but I'm afraid of progression...

Patrick:
Thanks for your detailed response! What I wanted to say about going of gabapentin wasn't concerning the withdrawal symptoms, rather the fact that if it works I don't think I would risk it and go off to feel horrible again
Now you're telling me it's not even the case. I'll see how long I can manage without it, some nights I fall asleep ok, but tonight I couldn't for most of the night
It's not even very much of a pain, it's a weird disturbance, hard to describe, but I guess you all know it

I started chelate magnesium before bedtime, maybe I should change the time or it doesn't matter?

I read about all the supplements and I'm buying them all. Hopefully they will be of any help

If the pain is really compression related would a surgery be an option if everything else fails?

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Originally Posted by Patrick Winter View Post
I can tell you as someone who has taken Gabapentin that it is by no means a miracle pill. It basically, kind of works, a little bit. Its a masking agent, and a poor one at that. Its success rate is actually very small in relation to neuropathy pain, clinical trials have proven this. If you are having trouble sleeping at night because that's when the pain is the worst you may consider it for just a night time dose, because it will help you fall asleep. But, there are other routes you could consider as well, Magnesium most notably.

You can get off gabapentin, its not a no going back situation at all. Far from it. Don't know where you got that idea. As a matter of fact, many people find gabapentin tends to lose its effectiveness over time. i personally would avoid it if at all possible, simply because the cons outweigh the pros.
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Old 02-28-2016, 01:35 PM #2
chris85 chris85 is offline
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Sleep is one of, if not the most, important thing when your trying to recover from these things. Whether it is magnesium or gabapentin or whatever it's important to find something that works fairly quickly. Amitriptylene is also good for sleeping. If you sleep well your body has a better chance of recovering so I'd try and maintain it.
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Old 02-28-2016, 07:14 PM #3
banjanti banjanti is offline
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I've been talking to a friend who happen to have the sane problem, he said he got 90% remission just by pregabaline 25mg at bed time and alpha lipoic acid
Dose seems extremely low from what I'm reading,
What dose are you on?

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Originally Posted by chris85 View Post
Sleep is one of, if not the most,
important thing when your trying to recover from these things. Whether it is magnesium or gabapentin or whatever it's important to find something that works fairly quickly. Amitriptylene is also good for sleeping. If you sleep well your body has a better chance of recovering so I'd try and maintain it.
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Old 02-29-2016, 02:00 AM #4
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100mg twice a day, but i started at 50mg and that is enough for sleeping.
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Old 02-29-2016, 08:44 AM #5
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Hello everyone, there is one question asked that I also would like to hear some feedback on. It is, if the pain is compression related, or even Neuroma (scar tissue blocking nerve I believe from a prior surgery), could surgery be a option for producing favorable results?

Best Regards,
Bob
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Old 02-29-2016, 02:40 PM #6
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Quote:
Originally Posted by bestbob View Post
Hello everyone, there is one question asked that I also would like to hear some feedback on. It is, if the pain is compression related, or even Neuroma (scar tissue blocking nerve I believe from a prior surgery), could surgery be a option for producing favorable results?

Best Regards,
Bob
I think your better off consulting a doctor about that one
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Old 03-01-2016, 08:05 AM #7
banjanti banjanti is offline
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I've started lyrica 25 mg this night, no side effects...no effects at all, even didn't felt sleepy
Pain seem to be lower, but can't say if that can be related at the moment
Bumping up to 50 this night
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Old 03-02-2016, 01:59 PM #8
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Quote:
Originally Posted by bestbob View Post
Hello everyone, there is one question asked that I also would like to hear some feedback on. It is, if the pain is compression related, or even Neuroma (scar tissue blocking nerve I believe from a prior surgery), could surgery be a option for producing favorable results?

Best Regards,
Bob
Since what you want is a theoretical answer, then I'll repeat what I've been told. Yes, theoretically, nerve pain from a compression will resolve in time after the compression is removed. Nerves regenerate very slowly, so amount of damage = amount of regeneration time. What I know for a fact is that post-damaged nerves aren't the same as pre-damaged ones. Things can get a bit wonky, for lack of better word. I have spots along a regenerated nerve that I cannot feel, and even weirder, I can touch point A but feel it in part B. Small price to pay of course, but I did want to mention it.
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