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Old 03-02-2016, 08:55 AM #1
banjanti banjanti is offline
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Lyrica works, first I though it's too quick, but I'm pretty sure now that's it
Luckily no sides with it besides feeling a bit slow and having hard time going out of bed ("just another minute" thing)
When I get up though I don't feel sleepy or dizzy

Now I read all the horror stories of withdraw, I don't think I want to cross the 50mg dose/day, but most likely it will stop doing the trick after a while
What made you go from 50a night to full 200/day Chris?
did it stop working for you at that dose or it never did?

Last edited by banjanti; 03-02-2016 at 09:53 AM.
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Old 03-02-2016, 12:41 PM #2
chris85 chris85 is offline
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Why did I go up, because of the pain and my dr told me too. Ive improved while on it, probably because of increased sleep. Yeah i feel a bit drugged but on balance its worth it.

All my blood tests are negative too. They told me thats a good thing, but im not too convinced. Its mainly my knees i get it, but a bit in arms, with the tingling hand thing. I guess my nervous system is screwed up.

Im seeing the neurologist monday. Two rhuematologists said not fibro, thats something. I get the feeling I need a miracle after 1 year of this, not seeing many of these around unfortunately.
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Old 03-02-2016, 03:20 PM #3
banjanti banjanti is offline
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I was afraid of that answer, 50/day seems too good to be true, but on the other hand my friend is getting along on 25a day and says he's fine!

I feel just like you about the results, it's good to know that is not some horrible desiese, but not knowing that it is it's even more worrying somehow
Luckily lyrica took my anxiety away, so I'm not worried in emotional sense

Best luck in the world for your appointment!

I've scheduled one for a professor of neurology that suppose to be really good, but he's busy until June
Another recommended guy may be able to see me in 2 weeks time, that's way better!

I have a clue that regular neuros are clueless, you have look for high end specialist
At least it's what I hope

Btw have you ever tried marihuana or any cannabis related thing?
I've used weed recreationally, stopped years ago, but if that was going to help I might just get high if that will make me painless!

Quote:
Originally Posted by chris85 View Post
Why did I go up, because of the pain and my dr told me too. Ive improved while on it, probably because of increased sleep. Yeah i feel a bit drugged but on balance its worth it.

All my blood tests are negative too. They told me thats a good thing, but im not too convinced. Its mainly my knees i get it, but a bit in arms, with the tingling hand thing. I guess my nervous system is screwed up.

Im seeing the neurologist monday. Two rhuematologists said not fibro, thats something. I get the feeling I need a miracle after 1 year of this, not seeing many of these around unfortunately.
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Old 03-02-2016, 03:42 PM #4
chris85 chris85 is offline
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Quote:
Originally Posted by banjanti View Post
I was afraid of that answer, 50/day seems too good to be true, but on the other hand my friend is getting along on 25a day and says he's fine!

I feel just like you about the results, it's good to know that is not some horrible desiese, but not knowing that it is it's even more worrying somehow
Luckily lyrica took my anxiety away, so I'm not worried in emotional sense

Best luck in the world for your appointment!

I've scheduled one for a professor of neurology that suppose to be really good, but he's busy until June
Another recommended guy may be able to see me in 2 weeks time, that's way better!

I have a clue that regular neuros are clueless, you have look for high end specialist
At least it's what I hope

Btw have you ever tried marihuana or any cannabis related thing?
I've used weed recreationally, stopped years ago, but if that was going to help I might just get high if that will make me painless!
Thanks for saying good luck. I think most of these neuropathies aren't a quick fix and it takes time and effort on behalf of the patient, but who knows maybe it will be.

Yeah I haven't smoked for many years, I think it is one of the best treatments for neuropathic pains, at least people with fibro rave about it. Problem is I have a data analysis job so smoking pot probably isn't a good idea.

The other medication that people says works is cymbalta, but I think lyrica is enough for me now otherwise I'll probably feel too out of it. I've been taking omega3 and vitamin d for months now. Something is working a bit anyway, going upstairs is a bit easier now. I learnt is that exercise a sensible amount is a good idea and I've cleaned up my diet recently.
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Old 03-02-2016, 06:21 PM #5
banjanti banjanti is offline
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Yeah I know what you're saying, going back to smoking pot is not really in pair with my professional and social life those days, but knowing well the substance I prefer to get high than keep suffering, I'll explore other options first, or just try it for the nighttime

Are you drinking any alcohol on lyrica? I read it's contradicted, I'm a big wine and craft beer drinker, I have no problem leaving it altogether as pain relief is way more important, but was wondering if glass or two can hurt after I get use to the med


Quote:
Originally Posted by chris85 View Post
Thanks for saying good luck. I think most of these neuropathies aren't a quick fix and it takes time and effort on behalf of the patient, but who knows maybe it will be.

Yeah I haven't smoked for many years, I think it is one of the best treatments for neuropathic pains, at least people with fibro rave about it. Problem is I have a data analysis job so smoking pot probably isn't a good idea.

The other medication that people says works is cymbalta, but I think lyrica is enough for me now otherwise I'll probably feel too out of it. I've been taking omega3 and vitamin d for months now. Something is working a bit anyway, going upstairs is a bit easier now. I learnt is that exercise a sensible amount is a good idea and I've cleaned up my diet recently.

Last edited by banjanti; 03-02-2016 at 08:13 PM.
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Old 03-03-2016, 02:30 AM #6
chris85 chris85 is offline
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Quote:
Originally Posted by banjanti View Post
Yeah I know what you're saying, going back to smoking pot is not really in pair with my professional and social life those days, but knowing well the substance I prefer to get high than keep suffering, I'll explore other options first, or just try it for the nighttime

Are you drinking any alcohol on lyrica? I read it's contradicted, I'm a big wine and craft beer drinker, I have no problem leaving it altogether as pain relief is way more important, but was wondering if glass or two can hurt after I get use to the med
No I havent drunk while on it, cant help you there.
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Old 03-03-2016, 12:56 PM #7
banjanti banjanti is offline
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Quote:
Originally Posted by chris85 View Post
No I havent drunk while on it, cant help you there.
No problem, I don't intend to drink any time soon
It seems that lyrica is starting to show some side effects, I had blurry vision in the morning but it passed quickly, I feel some congestive impairment, a bit harder to focus, slower to remember things, I don't like it, and it's only 50mg
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