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Mark,
I am so sorry that you are dealing with so much pain. I do not have RSD but do have a nasty PN that is lately causing me to have an increase in pain so I can relate to you on that level. You did not say who is prescribing your meds. If you are not going to a Pain Clinic to see a doc that specializes in pain, you may want to check that out. Not that a neuro or GP can't work with you, it's just that a pain clinic only deals with your pain and may look at things with a different perspective. Also, when my burning sensation gets out of control, I ice my feet but very carefully. I wrap my ice bag with a kitchen towel so the level of cold is more controlled and doesn't freeze my hot, sensitive tootsies. I now have a laptop on a wireless connection in my bedroom so I can lie down and use it instead of the PC in the den. That's where I can also watch T.V. and read. To say that I have had to make major life changes is underestimating things. When I feel "good", I try to get out and see a movie, do some shopping (in stores with scooters) or visit friends. Well, that's my story and I hope it has helped you just a little bit. PM me anytime you have a question about PN or if you just need to talk. Best of Luck, Mark! Nancy-H |
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