Hi - I think the thread you may have been talking about is this one:

http://neurotalk.psychcentral.com/sh...d.php?t=229971

Check out post #13 by glenntaj - it mentions Jacksonville Shands in Jacksonville Florida.

All the best for finding a good neuro - from your symptoms you may also want to see a respiratory specialist if you aren't already - you may have autonomic issues going on.

--who is quite the expert on neuropathy, and wrote some influential papers about investigating neuropathy causes, worked out of Jacksonville Shands with Dr. Berger for a time.

I believe he's now out in Englewood Colorado.

Still, the work that's been done at Shands has given it a good reputation for neuropathy diagnosis/treatment; I feel bad that you haven't been able to have a good experience yet, but have you been to Jacksonville Shands?

Hello glenntaj,

My last neurologist in Jacksonville before we moved to Ocala was from Shands Jacksnville. His name was Dr. Michael Pulley. I believe he co-authored a medical article with another neuro. He has a good bedside manner. But when I was diagnosed with Mycobacterium Avium, Restrictive Lung Disease and Bronchiectasis, he sort of suggested that I should focus on dealing with my lung issues...a polite way of saying that he was taking a backseat in my treatment. He did a skin biopsy last Feb 2012 (4 months after mt symptoms started) and came back normal. Last year before we moved from Jacksonville, I had a consult with him and he referred me to a sleep disorder specialist hoping that my problem may be caused by sleep apnea but then again, the result was normal.

I saw a new neurologist in Ocala...well, he said after another NCV and EMG, i have a "mild neuropathy and a bit of fibro". I told him my pain is not body-wide but limited to (both) thighs down to feet. He gave me Aptiom and referred me to hydro therapy... I stopped Aptiom as its starting to trigger my vertigo and I could not make myself awake (even how much I tried). I know this loopiness is compounded by Gabapentin, which I am on since 2011. I am teying to wean off very very slowly from Gabapentin, in fact i am now just on 600mg daily because of noticeable brain fogginess.

Thank you for your feedback...truly appreciate it.

IPN

Hello bluesfan,
Thank you so much for your time tracing back the thread...I appreciate it.

I am under the care of a Pulmo and Infectious Doctor and on regular monitoring. Every year, my rheumatologist gives me a comprehensive autoimmune panel test, but the results are all normal...at this point, I do not know whether I am glad or not for having normal results.

Regards,

IPN