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Old 07-13-2007, 07:53 PM #1
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Alan has had more blood work done, than anyone I know. He was once hospitalized for a rash from head to toe, and they had no clue (it was actually an alergic reaction to celebrex), but they did more blood test on that man, well, more than they had ever done before.

Then, after he went to the neuro who specialized in PN, he had the specific PN blood work.

But the one thing he never had was the spinal tap, and once he got that, because it showed protein, that's when she said "AHA, this is indicative of auto-immune. He has his next IVIG next week. She said it has improved his balance. Really does nothing for his pain level. The only thing that alleviates his pain is when he is not sitting down, or sleeping. If he walks, then the blood goes to his toes and he has no pain. But because of a foot ulcer, he can't walk that well. But he has the oft-loading shoe and we shall see what happens next.

PN's a real bummer, this I know!!!

Mel
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Old 07-13-2007, 09:49 PM #2
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Possum, usually a deep purple place means an area of pressure that can become a pressure sore. Check all your shoes, see if you can figure out if anything is causing it.
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Old 07-14-2007, 06:21 AM #3
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Shoes and orthotics were both checked after I found the spot...didn't find anything. The only other thing I thought about was maybe there was something stuck to my sock but it had been washed so couldn't check it.

Dr office didn't call back Fri like I thought they would. This is making me more cognizant of how much I *don't* feel. Thanks for the input!
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Old 07-14-2007, 08:19 AM #4
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I'm sorry I don't have much to offer but I would call your doc on Mon again and keep calling until you get a return. Also I may be so confused but doesn't rsd have similar?Hang in there.
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