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Old 06-15-2016, 09:30 PM #1
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default Hi, I'm back!

Hi All,

Some of you may be old-timers who know me, but I've not been on the forum in ages, so I may be a new face to most of you.

I had idiopathic sensory and autonomic neuropathy for years before I was diagnosed with Lyme, and did great with treatment. I made up the lizajane.org charts that people use to help navigate through diagnosis for neuropathy and Lyme.

Lately, I've had issues: fatigue, a finicky leg, odd stuff. But odd stuff has been my history, and nothing lasts and I generally end up doing ok.

Because of my recent odd stuff--when I get tired, my foot gets floppy--my neuro ordered some new tests, and the GAD65 came back very abnormal.

Can this not be awful news? Anybody here understand this auto-antibody enough to tell me something reassuring?

I do get IVIG, and I'm hoping that somebody whose antibodies were in the IVIG had this, and not me.

LizaJane

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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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"Thanks for this!" says:
Aussie99 (06-26-2016), DejaVu (06-16-2016), echoes long ago (06-16-2016), madisongrrl (06-16-2016)
 

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ivig, lyme, neuropathy, odd, stuff


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