The Stumble Inn The place for social chat for our M.S. community. The Stumble Inn


advertisement
Reply
 
Thread Tools Display Modes
Old 06-07-2011, 08:42 PM #1
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default 3 blown veins 2 days of back to back mris 487 pictures of my brain....

And it still has holes. Lolno new ones some of the older ones have grown while my spinal cord continues to shrink. Still losing mass.

After last weeks infusion and mri days and early dismissal for kids and preparing for dd13 to come this weekend, I was going 100 miles a minute when I slammed into that brick wall and it made me stop... and then the tysabri sickness hit and the fatigue and the sinus thing and... it is so bed time!

Dh2b has learned to not use the but you look so good thing with me.now when I look good he doesn't acknowledge it. But if I look like crap or tired or not so hot it is then that he pipes up to let me know. Because I would not know that I was exhausted or sick without you visually confirming it for me.I don't get "honey, are you ok? You don't look so well" instead I get you look like crap. Why don't you go to bed?

Thus proving women with ms do like your false flattery nor your honest observations at our appearance.
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-08-2011), DizzyLizzy (06-08-2011), SallyC (06-07-2011)

advertisement
Old 06-07-2011, 08:47 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

And the Dam Beat goes on..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
legzzalot (06-08-2011)
Old 06-07-2011, 11:01 PM #3
clarkstar's Avatar
clarkstar clarkstar is offline
Member
 
Join Date: Aug 2010
Posts: 316
10 yr Member
clarkstar clarkstar is offline
Member
clarkstar's Avatar
 
Join Date: Aug 2010
Posts: 316
10 yr Member
Default

i feel your pain. my infusion wiped me out the next 2 days, hit me like a ton o bricks
__________________
Multiple Sclerosis Diagnosed August 2010
clarkstar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DizzyLizzy (06-08-2011), legzzalot (06-08-2011)
Old 06-08-2011, 06:34 AM #4
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Mine does that. I am exhausted for 2 days then I feel better then I get sick the next week. Every time. But its the only thing that has stopped new lesions from popping up on my mri
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
Old 06-08-2011, 06:54 AM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (06-08-2011)
Old 06-08-2011, 11:29 AM #6
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

Went to PCP today...

The good news is you are sick and the MRI shows no new lesions. The Tysabri is working.... here's an antibiotic. See ya next month.

Oh and there is nothing wrong with my breasts... at least not that they can see or feel, so it is a nerve thing and nothing we can do about it.

But, we may be switching from oral pain meds to a constant patch, at least at night time so that I may be able to sleep for more than 5 hours. He noticed I was a little wonky from lack of sleep.
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (06-08-2011)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I'm Back From 7 Days in New England & One Day in Hell nide44 Peripheral Neuropathy 6 05-05-2010 07:50 AM
I'm back.....9 days after Thymectomy JCPA Myasthenia Gravis 15 11-10-2009 02:19 PM
Back From 10 Days International Travel - Thought I Wouldn't Make It! nide44 Peripheral Neuropathy 15 07-23-2009 08:12 AM


All times are GMT -5. The time now is 03:30 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.