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#11 | ||
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They said I would get an appointment to see oral health consultant again in three weeks for the results. It's the same large university teaching hospital lab as Dolly the Sheep study came from so I think/ hope they know what they are looking for. She said it was the decisive test for Sjogrens so I'm very apprehensive about these results - if negative then what? If positive will it lead to further treatment? The letter from rheum registrar says that as no sign of inflammatory arthritis now, further immunosuppressants are not warranted. Nevertheless it will be good to have some clarity from this latest clipping at least. They got four salivary glands out - one "juicy big one"!
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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#12 | ||
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#13 | ||
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Thanks Healthgirl. I was on Plaquenil with methotrexate and latterly on its own for 18 months. It worked well for me but unfortunately it gave me a slow form of anaphylaxis so was forced off it eventually. I've tried four DMARDs altogether now - three would have been drugs used for primary Sjogrens. This is why I'm not that hopeful that a diagnosis of Primary Sjogrens would help my treatment options.
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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