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My Rheumatoid Factor was a low positive and rose over 2011. My inflammatory markers were soaring. But the small fibre neuropathy had started the year before and then these and Raynauds (which I'd never previously suffered from) would flare in tandem. Like you I couldn't drive - couldn't turn the key in the ignition even - wrists felt fractured and I lived in splints. Then I was given a steroid injection and my symptoms clean disappeared for a few months. Since then I've had methotrexate and three others plus several long courses of Prednisolone - which masks things brilliantly but made me eat more. I can't take NSAIDs anymore. It's only now that I look back on my pre-RA days and see a rather poorly woman with severe eczema, alopecia and rhinitis. I think I've had Sjogrens for decades. The RA was just a new manifestation of the same thing. In this sense it wasn't proper RA - it was synovial swelling caused by the Sjogrens. I think three years is quite a long time to put off diagnosis for and still think your peripheral neuropathy may be an unusual complication of your RA. And you do at least have certainty with your diagnosis of RA - which is more than I ever did. Even my original rheumy said as he diagnosed me I should "keep an open mind - things could change". Methotrexate with Hydroxichloraquine knocked my Sjogrens RA into the long grass but it took about six months to a year. Hang in there - there are lots more medications a seropositive person like you can try. Take care. Mat x
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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