Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-06-2016, 02:58 PM #14
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
MAT52 MAT52 is offline
Member
 
Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
10 yr Member
Default

Quote:
Originally Posted by mskari85 View Post
Thank you so much for your response - yet again. I am taking methotrexate for the RA. I've only been on it for a little over a month. I just got my RA diagnosis July 1, 2016. I actually went to the doctor in May for my PN, which I have been dealing with since January of this year. Then I mentioned my joint pain, which I always attributed to being overweight, and she ran blood tests. Then suddenly I'm at a rheumatologist with rheumatoid arthritis, not a single clue what it was, being sent home with some folder of information about it and a medication prescription for MTX. Still no clue why the PN, which is why I went to the doctor to begin with.

I am rather inflamed. But because I am overweight, it's hard for me to SEE how much. My hands hurt like absolute hell, even using the turn signal in the car is painful. I feel like every one of my finger joints are broken. My Rheumy prescribed me prednisone, haven't taken it yet, I am too scared. So, like I mentioned, I've had this joint pain for 3 years now. I kind of thought MAYBE it was something not great but I think I was too afraid to know. Then came the PN this year (long before I started taking any meds for RA) and when the PN got worse in May, so did the joint pain. So, I have to believe there is some correlation.

Thanks for the information, once again. I am so glad you got a diagnosis. I wish none of us had to deal with any of this, it really does not seem fair, but it must be nice to have an answer finally. I hope I will someday too.
I can't tell you how much I relate to what you are experiencing. My seronegative RA was pretty much as you describe yours. I too was overweight, also grieving having lost both parents suddenly and prematurely. I was menopausal so assumed it was all hormones but it did seem strange to have both wrists, both sets of knuckles and both knees all excruciatingly painful. I thought it was a combination of my weight, hormones, grief and hypothyroidism with osteoarthritis.

My Rheumatoid Factor was a low positive and rose over 2011. My inflammatory markers were soaring. But the small fibre neuropathy had started the year before and then these and Raynauds (which I'd never previously suffered from) would flare in tandem. Like you I couldn't drive - couldn't turn the key in the ignition even - wrists felt fractured and I lived in splints. Then I was given a steroid injection and my symptoms clean disappeared for a few months. Since then I've had methotrexate and three others plus several long courses of Prednisolone - which masks things brilliantly but made me eat more. I can't take NSAIDs anymore.

It's only now that I look back on my pre-RA days and see a rather poorly woman with severe eczema, alopecia and rhinitis. I think I've had Sjogrens for decades. The RA was just a new manifestation of the same thing. In this sense it wasn't proper RA - it was synovial swelling caused by the Sjogrens.

I think three years is quite a long time to put off diagnosis for and still think your peripheral neuropathy may be an unusual complication of your RA. And you do at least have certainty with your diagnosis of RA - which is more than I ever did. Even my original rheumy said as he diagnosed me I should "keep an open mind - things could change". Methotrexate with Hydroxichloraquine knocked my Sjogrens RA into the long grass but it took about six months to a year. Hang in there - there are lots more medications a seropositive person like you can try. Take care. Mat x
__________________
If you get lemons, make lemonade

Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
MAT52 is offline   Reply With QuoteReply With Quote
 

Tags
issues, oral, primary, sicca, sjogrens

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SFN, Sjogrens, IVIG Marie33 Peripheral Neuropathy 10 11-19-2018 07:02 PM
Possible Sjogrens or what else? MAT52 Autoimmune Diseases 3 06-30-2016 11:53 PM
Sjogrens??? Billylyne5 Peripheral Neuropathy 38 03-05-2015 04:50 PM
MS and Sjogrens? daisy.girl Multiple Sclerosis 8 11-13-2013 11:36 AM
How to diagnosis Sjogrens? savannah Peripheral Neuropathy 9 02-08-2011 07:07 PM


All times are GMT -5. The time now is 10:12 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.