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Old 09-13-2016, 06:19 PM #1
caroline2 caroline2 is offline
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I know none of us walk in other's pain but I don't think I'm ever pain free, but I guess I have a higher pain threshold and I don't want to take hard core pain meds. I am pain free when I sleep so that is a good thing. It's when I get up and start my day.

I'm seeing a new D.O. for bodywork and prolotherapy injections and he pushed me off ibuprofen as it was keeping my blood pressure elevated. I'm happy to be off it and my BP has gotten so much better, no spikes.

I tried Tramadol years ago and it did nothing, probably constipated me more than anything. Same with the opiates. He wrote me scripts for both these and I am not filling them. I can get thru my 24 hrs with Pain-RX and 2 arthritis tylenol for sleep.

Pain-RX - Cox 2 Inhibitor

I also know MSM powder reduces pain and I take it a few times a day in a good glass of water. Been taking it for years.

Pain makes one grouchy. I know I've changed a lot, but still try to laugh.
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Old 09-16-2016, 07:40 AM #2
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When my Pain Dr. had me try Lyrica they also gave me Tramadol for the bad days.

All Tramadol did for me was make me really really high. I mean really really high like scared the hell out me high the 2X I tried it. I also experienced really shallow breathing to the point I was afraid to fall asleep.

I wish I had a suggestion for you to try, I hope you find relief from your pain.
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My PN is considered Critical Illness Neuropathy. In October 2010 I left for a golf trip not feeling well, woke up in a hospital 21 days later. I was in an induced coma for treatment of Legioneers Disease. First day out of ICU I noticed the pain in my feet and as they say the rest is history.
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Old 09-18-2016, 12:40 AM #3
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Tramadol will take time for you body to adapt just like most meds. The first pill got me high and then went slowly up to 400mg/day and barely got a buzz but very effective for burning
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Old 09-18-2016, 09:41 AM #4
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Debi,

I'm sorry you're going through a rough time with your meds. Tramadol also makes me dizzy, groggy and nauseated. Bleh! No one wants to feel like that. I pretty much don't take it unless I really, really have to.

I'm wondering about a different approach entirely and this may be unrealistic but I thought I'd mention it. I got quite a bit of relief of stinging/burning nerve pain from a low dose of nortriptyline. It also boosted my mood and helped me sleep. We had to adjust my dose down because it too made me dizzy but once we found the sweet spot my pain overall was better managed and I had less breakthrough.

Just a thought if you haven't tried it already. With your paxil it would require kind of a whole regime change and may not be something you want to mess with but you never know.

I hope you get better relief soon,
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Old 09-18-2016, 12:11 PM #5
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Debi,

I'm so sorry you're having a hard time. Pain tends to make us impatient and grouchy....at least it does me.

I got a prescription for Tramadol when my spasticity from MS was at an all time high. 50 mg tablets. It was like taking nothing. I still have all but 2 pills from the rx.

I really don't have a lot of meds for pain....I mostly rely on Baclofen and Advil.

Maybe your doctor could take you off of the Morphine and put you back on the patch.

I know it's frustrating trying to get the right meds and dosages just so you can be comfortable. I hope your doctor can help you.
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Old 09-18-2016, 12:51 PM #6
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I'm back on Inosine in hopes of Nerve Restoring. I bought 2 bottles and we'll see if I notice a change. 80% of my thigh is still numb, and it's 6 yrs since surgery. I took Inosine and Sphingolin for 3 months, last year, and pretty much got rid of the BURN. I've read where some MS patients take Sphingolin.
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