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10-30-2016, 02:26 AM | #1 | ||
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My arms are feeling increasingly weak and leaden. Every night I have to prop them on very soft pillows and they feel as if full of lead. This is ongoing rather than a new symptom but the weakness is slowly increasing during the days too and I find myself carrying things such as plates only for short distances because I feel as if they have no power and I'll drop things. My SFN is much worse again everywhere. Is this all related or am I imagining things? (quite possible as I'm not sleeping a jot!).
When my neurologist tapped my arms I had no reflexes at all this time. I'm still waiting for word on when I might have my nerve conduction studies but starting to fret that things are progressing rather a lot. Hoping not because I'm due to spend a week visiting friends and family in London next week and will be 1000 miles from home and nowhere near my neurologist, rheum or local hospital. So I don't want this weakness,pain and fatigue plus tinnitus to dominate everything while I'm there on holiday or when travelling up and down. It's getting a tad spooky! (Just to add a Halloween touch!)
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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10-30-2016, 10:09 AM | #2 | |||
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i have long fiber sensory motor axonal neuropathy. I have been getting that heavy feeling in my legs when walking any distance or when i tried to keep running over a decade ago. it feels like i am lugging around tree trunks. i also get the heavy feeling in my arms if i try to use them at or above shoulder level. jy hands also tire quickly but dont feel heavy! After 15 years i probably also have some small fiber involvement but have never been tested for that. it wouldnt make a difference in life style or treatment at this point to have it confirmed. Your electromyography (emg) nerve conduction study (NCS) may give you some answers as to whether you have any large fiber motor nerve involvement
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"Thanks for this!" says: | St George 2013 (11-02-2016) |
11-01-2016, 04:41 PM | #3 | ||
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Quote:
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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"Thanks for this!" says: | St George 2013 (11-02-2016) |
11-01-2016, 05:20 PM | #4 | |||
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i try to stay as active as i can....lost some weight lately. to stay as mobile and maintain what stamina i still have. i have it for over 15 years now. i take many of the vitamins and supplements discussed here. Except for pain, there really is no treatment for it.
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"Thanks for this!" says: | St George 2013 (11-02-2016) |
11-01-2016, 05:54 PM | #5 | ||
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Quote:
__________________
If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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"Thanks for this!" says: | St George 2013 (11-02-2016) |
11-01-2016, 06:33 PM | #6 | |||
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"Thanks for this!" says: | St George 2013 (11-02-2016) |
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