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Old 07-21-2007, 08:14 PM #1
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The thanks is a great idea, especially for a learner as they are just gathering up facts and it is a lot to swallow first up and it's just an acknowledgement that the reciever is thankfull for your reply but hasn't yet got much to reply about other than thanks.
I have seen so many times were some people have put in a lot in their answers but the poster doesn't even acknowledge them and will skip a few posters and only answer one or sometimes knowbody, now that is straight out rudeness in my book, a simple " thanks to all " at the end is really appreciated.
Does the thanks button do "Thanks to all"

?????

In terms of not answering... when I was new to forums I used to not be able to find my way back, and I didn't understand how to get instant notifications.

So it wasn't really "rudeness" -- it was disability.

But I take your points.
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Old 07-21-2007, 10:39 PM #2
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Does the thanks button do "Thanks to all"

?????

In terms of not answering... when I was new to forums I used to not be able to find my way back, and I didn't understand how to get instant notifications.

So it wasn't really "rudeness" -- it was disability.

But I take your points.
Karen, the thanks button is new to me too, but i am 100% sure it only thanks under the post, what i meant was a simple " thank you to all " in a post, just to acknowledge those you replied to their question, i am sure you follow my drift.
What i don't understand is how could anyone find a forum, register, and work out how to post on a subject but didn't have the abilty to see the reply button
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Old 07-22-2007, 06:53 AM #3
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Default Well, Gerry, you've hit upon one of the great mysteries of neuropathic symptoms--

--do they stem from spinal damge, from damage to nerves farther down the periphery, or both.

The problem is, the exact same neural symptoms can stem from damage to peripheral vs. spinal damage--although, technically, damage to the nerve ROOTS from spinal stenosis/arthritis is radiculopathy (from the Latin for "root"), which is simply a subcategory of peripheral neuroapthy, which, as Rose suggests, involves any sort of damage not to the brain or spinal cord proper.

You would not be the first person around here to have both spinal problems and peripheral neuropathy problems contributing to symptoms, though. There is even the "double-cursh phenomenon", in which a given nerve pathway may be impacted both at the root level and farther down the periphery, and while neither insult individually might result in symptoms, taken together enough of the signal is disrupted to cause them.

This is why the search for the causes of neural symptoms is often a long, expensive process of elimination, and may not yield definitive results--especially when it comes to EMG/nerve conduction studies, which, as Dahlek notes, may well depend on the temperature in the room (this has a marked effect on nerve conduction) as well as the electrode-placing and intepretive skills of the tester.

You mention a few terms early on. You now know about "peripheral neuropathy" versus "radiculopathy"; "axonal" refers to damage to the nerve fibers themselves--the axons--and "demyelinating" to damage or stripping of the meyling sheathing surrounding the larger sensory and all motor nerves. One can have "primarily demyelinating" damage that allows the axon to be exposed to problems, or "primarily axonal" damage that results in demyelination from the inside out. Small-fiber neuropathy--damage to fibers that subsume the sensations of pain and temeperature--is by definition axonal, as these fibers are so thin they do not have myelin coverings. You may also see terms like "mononeuropathy" vs. "polyneuropathy"--one nerve versus many.

I suspect you have effects both from the chemotherpay and your lower spine--and your chemo regimen may well have contributed to/exacerbated your lower spine deterioration.
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Old 07-22-2007, 11:20 AM #4
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Karen, the thanks button is new to me too, but i am 100% sure it only thanks under the post, what i meant was a simple " thank you to all " in a post, just to acknowledge those you replied to their question, i am sure you follow my drift.
What i don't understand is how could anyone find a forum, register, and work out how to post on a subject but didn't have the abilty to see the reply button
Okay... chronologically: you come, register for a big forum... then you find topics and write things and then you go do the dishes or something.

If your memory is really bad, you may not remember how you found the big forum.

If you remember that you found it, then you may be able to go to your emails and the activation in order to go back to the forum.


When I first began joining forums my memory was so bad that I didn't really remember... the things I had in mind were what I could see. It was very scary.

So, if that's how someone is, or even somewhat like that, then they aren't going to actually be able to go back and see if there are any responses.

If your memory is good, then I'm sure you wouldn't be able to understand how debilitating (socially) it is to not be able to remember.


I'm soooo much better now. But, I still try to remember to sign up for instant notifications... that way I can just click to get back to the topic... I don't have to find it.

See, the other thing with cognitive dysfunction, is that "planning" is really hard when memory is so impaired.

I still can't remember very much at one time... I don't have to keep repeating something in order to be able to do it, but when I have several things to do it's like a wind storm in my mind... it's not clear and it's unsettling.


To me, stress is the worst. It just uses up so much energy... and I think the using up of that energy is what burns up nerves... once the lubricating B12 is gone... that's sort of how I explain it to myself.

The stress is so bad with my condo, given that the courts have denied me due process, that it's sometimes hard for me to justify my continued fight.

I posted a topic in Social with a link to pictures of my condo.

I would love it if people took a look.

Would you?
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Old 07-22-2007, 08:46 PM #5
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Okay... chronologically: you come, register for a big forum... then you find topics and write things and then you go do the dishes or something.

If your memory is really bad, you may not remember how you found the big forum.

If you remember that you found it, then you may be able to go to your emails and the activation in order to go back to the forum.


When I first began joining forums my memory was so bad that I didn't really remember... the things I had in mind were what I could see. It was very scary.

So, if that's how someone is, or even somewhat like that, then they aren't going to actually be able to go back and see if there are any responses.

If your memory is good, then I'm sure you wouldn't be able to understand how debilitating (socially) it is to not be able to remember.


I'm soooo much better now. But, I still try to remember to sign up for instant notifications... that way I can just click to get back to the topic... I don't have to find it.

See, the other thing with cognitive dysfunction, is that "planning" is really hard when memory is so impaired.

I still can't remember very much at one time... I don't have to keep repeating something in order to be able to do it, but when I have several things to do it's like a wind storm in my mind... it's not clear and it's unsettling.


To me, stress is the worst. It just uses up so much energy... and I think the using up of that energy is what burns up nerves... once the lubricating B12 is gone... that's sort of how I explain it to myself.

The stress is so bad with my condo, given that the courts have denied me due process, that it's sometimes hard for me to justify my continued fight.

I posted a topic in Social with a link to pictures of my condo.

I would love it if people took a look.

Would you?
If a persons memory was impaired you would think that the good old pen and paper would come in real handy, i do it myself still, i couldn't possibly remember every site that is important to me, if i didn't use " my favorites" or just dot it down on a bit of paper.
Anyway most sites that you register, you do get an activation number telling you the name of the site and all, all you have to do is open up your emails, if you forget your password or forum name you only have to enter your email address and they send out another, how easy is that ?

This is way off track to what i meant in my post, i am not picking on anyone with a bad memory that's not my style, i was saying that i have seen some of the good people here put a lot of work in their answers to help someone who has asked for help, then no reply,then say 2 weeks or 2 months down the track another post comes in off the same ignorant person and same thing happens again, no answers, no thankyou, nothing at all, that does get to me because these terrific people here are in pain themselves but give their all to try help others out but just get ignored, thankfully it does not happen often.
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Old 07-22-2007, 09:47 PM #6
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If a persons memory was impaired you would think that the good old pen and paper would come in real handy, i do it myself still, i couldn't possibly remember every site that is important to me, if i didn't use " my favorites" or just dot it down on a bit of paper.
Anyway most sites that you register, you do get an activation number telling you the name of the site and all, all you have to do is open up your emails, if you forget your password or forum name you only have to enter your email address and they send out another, how easy is that ?

This is way off track to what i meant in my post, i am not picking on anyone with a bad memory that's not my style, i was saying that i have seen some of the good people here put a lot of work in their answers to help someone who has asked for help, then no reply,then say 2 weeks or 2 months down the track another post comes in off the same ignorant person and same thing happens again, no answers, no thankyou, nothing at all, that does get to me because these terrific people here are in pain themselves but give their all to try help others out but just get ignored, thankfully it does not happen often.
Just yesterday I joined a forum to get the cards for Dahlek, and discovered I was already a member.

I take it you don't have memory problems to speak of.

Else I think you would know that while writing things down is great, you still have to organize all the notes or you can't find what you need, and after a while, remembering what you took notes on is ... well, it isn't.

I'm unclear why you are so into this. Did I fail to thank you at some point?
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Old 07-22-2007, 10:31 PM #7
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Default Hey Karen...that is what I have always called....

A MEDICAL MOMENT?, easy to blame it on the meds, rather than the underlying condition or...well, anything? The med thing is the BEST for all social circumstances unless it's a driving or DUI issue...as in driving under meds....Then it gets squirrelly...
Just be careful out there...and all that! Ya know? - j

As for 'memory'...Did I have one of those? Can I recall where I put it? Is that near my green sweater? - DUH - you got the drift... Yep, 'medical moment'....best excuse ever for lots of well, STUFF!
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Old 07-22-2007, 11:00 PM #8
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And i am unclear why you choose to blame bad memory or disability for all those jerks that don't bother to acknowledge any of our members answers who have put in a lot of their energy into really trying to help that person asking the question/s, in my book that is rude/ignorant, and that's all i am on about.
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Old 07-22-2007, 11:46 PM #9
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A MEDICAL MOMENT?, easy to blame it on the meds, rather than the underlying condition or...well, anything? The med thing is the BEST for all social circumstances unless it's a driving or DUI issue...as in driving under meds....Then it gets squirrelly...
Just be careful out there...and all that! Ya know? - j

As for 'memory'...Did I have one of those? Can I recall where I put it? Is that near my green sweater? - DUH - you got the drift... Yep, 'medical moment'....best excuse ever for lots of well, STUFF!
Do you think that having my mood as Confused... that it could be coming out of the computer and making me confused.... I need that twilight zone music to play in the background as you read this....

I am SOOOOOOOOOOOOOOoo Confused. I'm trying to work on this appeal brief and the part I'm at is a mishmash... I hate to admit it's a mishmash and skip over it, I think the lawyers would have a hey!day with that.

Loved your post. Made me smile.

Thanks.

Well, I'm changing my mood! Right now!

....

waiting for it...

I've changed my mood.

waiting for it...

am I feeling fine?????

Possibly so.
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