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Old 07-21-2007, 09:22 PM #18
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
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15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Gerry, Understand all of the frustrations...

as I've a cancer friend who's helped me w/THAT, and I with the neuropathies. We share in a somewhat symbiotic relationship as we both learn from each other?
For me the neuropathy came first, then the cancer. Fortunately mine was contained, tho whether the Nuropathy's were caused by the cancer or not related is not determined, as, unfortunately treatment for EACH is, essentially THE SAME FOR EACH!!! Surprisingly, many, many of the advances in learning about neuropathies are due to a bunch of smart, and vocal cancer patients? Yet, some docs [ocons] don't have a full knowledge or complete up-to-date knowledge on the AFFECTS of chemo to the nervous system. Conversely many neuros haven't a clue about chemo other than treating the results....meaning the nerve damages.
All I can ask you is, were you really warm or cold during either the first or second set of nerve conduction tests? Reason I ask [believe I'd posted it about 6 months ago] is a paper written by the head of an area neuro dept here that indicates tests can come out INCORRECT due to YOU being too hot or cold....Temperature and nerve conduction varies during hot or cold times!

Here is a site all about what are called 'Toxic Neuropathies' -Chemo is one of them: http://www.neuro.wustl.edu/NEUROMUSC...ther/toxic.htm

Ask questions away after trying to figure this one out...I believe you WILL see some things there that will give you clues....If you want more references, I can find them....Hang in there! - j
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