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Old 01-03-2017, 02:10 PM #3
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
10 yr Member
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
10 yr Member
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Originally Posted by LouLou1978 View Post
Hi Healthgirl. I'm sorry you still feel you are at square one. At least you know you don't have a genetic neuropathy so if autoimmune there should be some sort of treatment? My sister has been diagnosed with sfn too. I think proff thinks it is autoimmune as has recommended ivig for her. I'm going to get my neurologist to read her diagnosis letter when he returns from leave. We don't have abnormal ANA results. The weird thing is ours started at the same time. I mean both in December 2012. I am hoping to be referred to another professor who deals with genetic neuropathies so hope to get some answers .Are you able to get a trial of ivig?
no trial of IVIG for me. Were you and your sister living together before or during the onset of symptoms? Hopefully they can run your genome soon. It took so long for my results to come back.
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