[QUOTE=mskari85;1234281]A few things...

Have you considered having a lip biopsy for Sjogrens? That would be the real determining factor and given all the tests you've already had, it would be worth it at this point.


From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman's Journey Through the Medical Profession - Health Rising


This may have been posted before. It's a great blog /article I read a while ago about a lady having all these Sfn / POTS symptoms. Finally diagnosed with sjogrens as the primary cause of it. Only the lip biopsy showed it.

Aside from the severe eczema and status asthmaticus/respiratory conditions I had as a child, the first sign of my Immune Disorder was Sjogren's-like Syndrome.

It wasn't really Sjogren's because I don't have autoantibodies enough to account for my various organs/sytems that have been attacked (lungs, bladder, ears, peripheral nerves, small fiber nerves). My Immunologist thinks my Immune Systems attacks with Cytokines not autoantibodies.

The best place to seek help for Sjogren's AND related PN and other conditions is at Sjogren's World:

Living With Sjogren's

Just log in and ask for help.

Hugs, ElaineD

I have Sjogren's, and from what your relaying, it seems completely worth while to have a lip biopsy done. Many doctors would already diagnose you with Sjogren's, just based upon your ANA,, SSA, and low complement. But the lip biopsy would confirm it.

If positive, you would certainly be a candidate for IVIG.