I have pn but my major like most know is in my left inner ankle foot but have pn actually in both legs. Anyhow all the current docs say I need to treat it like RSD though I don't have some of those symptoms. That is why they want aggressive rehab and why they want the epidural catheter for me so I can work through the pain. I have been doing more every day without even on some days a 15 minute walk but really pushing like errands. Anyhow anyone with RSD here and what you do to help? The doc said that he wants me to be able to run again which I will never do again but would love the option so why the rehab is important. He kept saying you need to exercise on it and it feels worse at the time but better in the long run. He said since I fear damage that its not just feeling it will. Have people found they have made huge progress with more activity?I'm looking into a lower level pt program then was at CC to see if I can do it witout the catheter. Also I have the on and off dizzy and shot in the neck feeling. I get super shaky and no tests or meds seem to have the reason of why. It comes and goes like a few days I will have it then a week not and I even baught a carbon monoxide detector thinking that may be why. The alarm never rang though. I worry about having a seizure almost. Is this a symptom of rsd too or pn? All the docs just look at me like we don't know why and my sugar and bloodwork has been tested so many times. Of course at the program it never happened. Also my leg seems to get very painful in the cold more then when warm or even a breeze kills it. Just any ideas and I found a rsd support group so I'm hoping to join since similar right now to my pn. Thanks

I have to go back to the hospital today for my leg. I'm getting ready in
a few mins. I plan to scream,so plug you ears,ha. It's so hard to get
ready so will talk to you if they let me come home. You take care,i
really don't want to go,cause it's going to hurt ,darn boo boo Sue

There is an RSD forum on this site. Look thru the menu.

Billye

daniella,

here is a link to our rsd forum. it is a very active and supportive group.

http://neurotalk.psychcentral.com/forumdisplay.php?f=21

if you get a chance, take a look at the stickies. they are full of resorces.

Thank you and I will repost it there. Sue good luck. I hope you buy yourself a "treat" after. Its my ritual after apts that are hard. It started when I was young. Is your pt for RSD?