Healthgirl:
Having never heard of Collagen Disease, I looked it up and was surprised to find that the Fuch's Corneal Dystrophy that I have is also in the collagen disease category. It is an inherited condition that affects my vision and would ultimately cause blindness, but fortunately it is curable with partial cornea transplantation. I guess I'm also in a "wait and see" category (pun intended), with the doctors checking me annually to determine when I will need to have the surgery.

(I realize none of this has anything to do with your condition - just wanted to thank you for raising my awareness and helping me learn a bit more about one of my own conditions.)