Thanks both! Am fully stocked up on products to help now - you have to be very organised with this illness hey!

Some further developments on my search for answer, the ultra sound actually showed severe shrinkage of my lacrimal glands. The partroid glands apparently look normal sized at the moment, so it seems to have attacked my eyes quite heavily first. Next steps will be lip biopsy which the rheumy says correlates with this.

I actually got a call from my doctor this week who said they had tested my blood for Lyme disease and it has come back positive, but I need another test to confirm this. I have read somewhere that this can test positive sometimes in people with auto immune disease, so we'll see what that brings too.

Just very happy to be moving forward with this rather than just being looked at like I was crazy. Hopefully if they can get to the bottom of it they can actually help me address the neurological issues .

Thanks for listening!

Kirsty