I know someone in the Lyme world who was full body small fiber. They bought a home unit (mHBOT) to try out. It took 60 dives to see any improvement. They decided to purchase it and they have recovered from neuropathy. There are a few Lyme patients that have a story like this.


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Alan is not a candidate for this treatment. Even his podiatrist agreed. So we cancelled the evaluation. As for his foot ulcer (we have tried various treatment methods over the years). We are now using Colaginase Santyl and as of two days ago, it's working. I wrap his foot every day and put him in the crow boot.

Because his skin is affected by being in a crow boot all day I had the idea of letting his legs BREATHE for awhile when he watches tv when he sits on the couch. So I took a photo of a little doggie bed and showed it to his podiatrist. I said "What if we take the crow boot off, I cushion the sock a bit so he will have the dressing, a cushion over the dressing, then I put the sock on and he can rest his feet in the doggy bed?" The doctor said "Great idea but remember his foot can't touch the ground, this is a pressure ulcer'.

I get it. I got the doggie bed. Now when he sits on the couch, his feet can be free, he keeps the feet resting in the doggie bed, he can jerk his leg when his neuropathy bothers him and he's not placing his foot directly on the floor.

When he wants to go to the computer, I simply but the boot on, and he can walk from the couch to the computer.

The other thing was "What do we do during the night when he has to get up to pee"??

I put a big depends on him. I didn't secure it because I'm stupid and of course it leaked. So I changed sheets, cleaned the bed, etc. etc.

Tonight I now know that I have to secure the depends (like a baby diaper change) and this should solve THAT problem. I will also place a waterproof pad under him so hopefully no more wet sheets.

This is all on me. His family deserted us when I had my broken hip. Seems they can't handle disabled people.

At least now I know they have no character. Never asked them for anything but to check on Alan when I was in the nursing home with a broken hip. I was away for over 4 weeks. They never came to check on him. Sorry bunch of people they are.

My friends went up to my apartment (got the key from me in the nursing home). Found him almost dead in the bed due to an enterovirus. They rode with him in the ambulance to the hospital and he was released the next day.

This happened twice while I was away. When I got home in January he laid in bed for 10 days. Gave him gatorade and took care of myself. Very hard but I did what I had to do.

Now the goal is to heal this foot ulcer so he can then put on the new custom molded shoe that is attached to a brace.

So. baby steps and we'll get there.

I just hope I can keep this up. I have good friends but no family. Shame on them.

Melody

Have you looked into getting a bedside urinal bottle for him to use?

Hi. Of course. Been doing that for YEARS. But he tried doing this by sitting up, he missed and got urine all over the floor. This happens at 3 a.m. I'm dead asleep by then.

Tonight I put the depends on the correct way and I have a bed pad underneath him. Of course, knowing nothing about bed pads, I went to the local drug store, found 12 for $6.95 never asking what size they were. They looked like small mats. I have one under him. Now I know to get the larger bed pads.

Can't wait to see what I wake up to.

Will update if all my attempts at keeping his foot off the floor works.

Thanks much.

Melody

Hi Melody

Welcome back - I'd been wondering how you were doing but then had to go M.I.A myself for a while - computer snafu's and helping a friend look after her hubby.

I read it was decided Alan wasn't suitable for the Hyperbaric Oxygen treatment - my cousin had an ulcer on her lower leg and foot - HO did nothing for her, so maybe you saved some money at least.

Collagenase SANTYL is for wound debridement (ie: to clean up the dead skin around wound so new skin may grow.) FYI: I came across this info about it.

"Occasional slight temporary redness has been noted in surrounding tissue when applied outside the wound. One case of an allergic reaction has been reported after 1 year of treatment with collagenase and a steroid cream. Use of Collagenase SANTYL Ointment should be stopped when debridement is complete and granulation tissue is well established."

If the Collagenase SANTYL doesn't help send me a PM - I may know of something else you can try.

Good to see you're still battling on - your posts always inspire me.

cheers bluesfan

Hi there. Glad I'm inspiring someone!!! lol

The depends thing didn't work. And I found him standing up at 6 a.m. using the urinal. So I had to do SOMETHING so he would off load that foot (even though he was just standing on it for 30 seconds or so.

So last night after I dressed the foot ulcer, I wrapped it, then I placed half a sock over it THEN I GOT A PIECE OF VISCO ELASTIC FOAM (like the Temper Pedic Mattress topper) Actually it WAS a piece of the mattress topper.

I put the foam inside the sock so he would have a nice cushion when he got up to pee.

This morning there was no blood on the sock so this is what I will do every night. I tried to put one of his old custom molded shoes on him (to protect that foot ulcer) but it would not fit over the bandage and the foam so I said "what the heck", let's just see what happens.

So this is what I will be doing every night before he retires for the night. Dress the wound, wrap the wound, place half a sock over the top part of his foot, place a piece of foam on it, put on the sock. Then he goes to sleep.

Hey, we gotta do what we gotta do, right?

Melody

And I will pm you.