Most know my major issue is in my left inner ankle/foot/calf. A few months ago I had it for a brief period in my righ in the similar areas and felt like I couldn't propel with my right. Well the past 3 days my right is in so much pain too and in the same areas. I have been pushing more and doing so much on my feet in the past week as the docs said I have to do as much activity as I can handle. I have been putting a lot of pressure on the right to take some off the left. My docs want to treat my pn like rsd. The last doc said something about the pn in both. So can some explain more the results and is it truly similar in both legs just the left worse? Thank you.

Nerve conduction studies were obtained following posterior tibial motor,peroneal motor and sural sensory nerve stimulation. There were prolongation of the distal latency of the right peroneal and bilateral conduction velocity slowing 22.8 meters per second right,35.9 left. Sural latencies were intact following right sided stimulation,boderline latency on left with conduction velocity slowing 35.2 meters per second. This was an abnormal study consistent with a bilateral sensory motor neuropathy. These findings should be clinically correlated.
Somatosensory evoked potential(SEP) were obtained following posterior tibial nerve stimulation at the ankles. Following stimulation of either side,well-formed and reproducible popliteal fossa,lumbar and cortical potentials were seen. There was mild prolongation of the L3 response. There was shortening of the left L3-Lp37 interpeak latency. This is an abnormal study consistent with conduction delay subserving the sensory pathway of he left lower extrmity between the popliteal fossa and lumbar cord. The finding should be clinically correlated.

But I just popped in and saw your note. So I guess you can take the RSD off the menu. You definitely have sensori-motor neuropathy. It's time to pursue all the causes of it, so this is where you either use the lizajane charts and make sure you get all the tests, or trust your neurologist, or, at the very least, Athena. (Though they do not have everything that should be checked.)

I do wonder if you have Charcot-Marie-Tooth. Have you checked on their boards to match the rest of your history?

Yes I have had every test and that Charcot was ruled out. My last doc said I have had every diagnostic test and the only thing left is to chop the leg off. I like many here are having a hard time. Finally after months I see progress in the left. It is ainful still but at least progress. Now my right leg which only happened a few times during this issue but not this pain level or for this long is horrible. So I was wondering if they test did show it in both legs? I wish docs would explain more. I ask but I never get a direct answer. I'm going to go to u of m pain clinic I think after I meet with the anastesogist from there which was recommended from the one I saw in Oh. Maybe he can give more options other then the catheter. Can anyone tell me why my issue would be treated though similar to RSD?

I'd bring a copy of those tests for the doc to keep or not [just be sure you keep your originals!] and ASK right out WHAT DOES THIS ALL MEAN? I don't know about you, but I'm not anywhere near being a neuro-diagnostician....
Can someone please PLEASE explain to me what I DO have or might have rather than what I don't have? And, then, what do I have to do to get tested etc and get better?
Honesty gets you lots farther faster than anything, especially with doctors who have ''heard it all"?
It's clear you want to learn and understand what all has been happening to you, it's also clear that you have been trying hard to 'go with their program' even when in that state called PAIN. You either get a surprised look and answers or a surpised look and be put off....So every doc you see after this, ASK! But, be careful what you ask for...you mite get much more of an answer than you can asorb all at once! That HAS happened to me! I sat there with my jaw dropped and listening and writing furiously on that note pad I always bring,, of course, the pen wouldn't work rite [durn it?]
Hope this helps - hang in there - good things are going to happen - j

Daniella, I've been in this community for years now, and even now, I can't say I've had ALL the tests, because medical knowledge is always growing.

I have some standard, Liza Jane advice for you: Collect all your records. Have every doctor you've seen fax "every test" was done. As for your doctor being so sure he's ruled out Charcot Marie Tooth, I'd want to know just how he did this. There are a multitude of genetic tests for it, and I wonder which he did.

You wonder if both sides are involved. But you also wrote this:

"Nerve conduction studies were obtained following posterior tibial motor,peroneal motor and sural sensory nerve stimulation. There were prolongation of the distal latency of the right peroneal and bilateral conduction velocity slowing 22.8 meters per second right,35.9 left. Sural latencies were intact following right sided stimulation,boderline latency on left with conduction velocity slowing 35.2 meters per second. This was an abnormal study consistent with a bilateral sensory motor neuropathy."

According to what you've written, you have bilateral disease.

What catheter are you talking about? I don't know of any tests requiring a catheter and I'd be interested to hear.

Please go to lizajane.org and download the test lists. Bring it with you to your doctor and ask if you have had all the tests.

It does not sound like a small fiber neuropathy, however, it sounds like a large fiber, post-ganlionic type thing, (the conductions were slowed from your knee to your spinal cord), and those are often immune. So you ought to get all those antibody tests, and maybe a spinal tap. (Ask Melody about that!)

She is one of us who happens to be smarter than the rest of us about some of this stuff. She is right on target! Go, get copies, Do, and Ask.
's a plenty - j